Lipkin's Monster ME/CFS Study: Microbes, Immunity & Big Data
The Microbe Discovery Project outlines an ambitious new study by top researchers that has collected patient samples, but needs desperately funds to complete the work.
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Alopecia + Xeljanz

Discussion in 'Other Health News and Research' started by SDSue, Jun 21, 2014.

  1. SDSue

    SDSue Southeast

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    Maybe if we shave our heads we can be taken seriously and finally get some additional trials going. Who's with me?

    Side note: Google alopecia + psychogenic, and you'll see that alopecia is still considered a psych condition by the Overlords of Psychology. (Insert cursing here)
     
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  2. CaptainA

    CaptainA

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    So I know that this thread is super old but I wanted to mention that I'm currently being seen by one of the top ME/CFS doctors in the world and they mentioned using this drug.
     
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  3. Gingergrrl

    Gingergrrl Senior Member

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    Was just curious, in what context is your ME/CFS doctor using this drug? Is it for something autoimmune similar to RTX or totally different?
     
  4. CaptainA

    CaptainA

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    I honestly have no idea. I can say that he is very focussed on CMV and the viral aspect of ME/CFS. At the end of our last appointment I just asked what the newest thing they are working on was he quietly mentioned this along with saying that they have big hopes for it. I'm seeing him in a couple of months and will be asking more info.
     
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  5. Gingergrrl

    Gingergrrl Senior Member

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    Interesting and thanks!
     
  6. CaptainA

    CaptainA

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    @Gingergrrl I've looked for the medication online to buy but haven't found it. It doesn't seem to have a ton of side effects so I was thinking about trying it myself. I might just wait until I hear back from the Dr./Prof. before I go it alone
     
  7. Gingergrrl

    Gingergrrl Senior Member

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    I would wait to get more info (if it was me) so you'd know why they are looking at this med and if you are a good candidate for it. But I am more cautious until I am fairly certain the risk/benefit is worth it.
     

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