Discussion in 'Other Health News and Research' started by Sasha, Jul 23, 2015.
Just got this email today from AllTrials:
This thread seems to be a good place to post this new article by Ben Goldacre, which came to my attention via Linda Vansteenwinckel on Twitter.
Scientists Are Hoarding Data And It’s Ruining Medical Research
Major flaws in two massive trials of deworming pills show the importance of sharing data — which most scientists don’t do.
July 23, 2015
"Conducting a trial, and then refusing to let anyone see the data, is like claiming you’ve flown a spaceship to Pluto, but refusing to let anyone see the photos."
Funnily enough, I was thinking to myself that's a bit ironic when I read that the call for transparency was coming from pension fund and asset managers.
Then I read this bit:
It is a valid point but it does smack of self-interest.
Signed: a financial services industry worker
Interestingly enough, someone made that exact same point in the comments on Brian Vastag's article in the Washington Post - that PWME asking for more research money smacked of self-interest.
I think the thing in both cases is that the self-interest is justified: and it's not limited to one's own self but to others in the same position with the same legitimate interest.
So if we get $250m from the NIH, no single one of us will be hogging the research findings to him/herself for his/her own personal use.
Yes the self interest is justified but speaking as an insider I'd like to see them clean their own act up too.
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