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I saw this incredible case of of extreme MCS ......I found it very moving and I can relate to to her symptoms though mine are not so severe but not far off !!
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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Allergic to Life: Multiple Chemical Sensitivity 14min vid.
- Thread starter xak53
- Start date
IThinkImTurningJapanese
Senior Member
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When I grow up I wanna be a man like that. 
- Messages
- 66
- Location
- Cornwall, UK.
Gingergrrl
Senior Member
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Wow, I just watched the entire segment and it brought tears to my eyes. I was headed down that path in 2015 (allergic to all food and most smells/odors) but I never became allergic to people.
Dr. Afrin, in the interview, said Johanna did chemo (I assume Gleevec) but I am wondering if she tried IVIG which put my MCAS into remission? I know it's a long shot and I cannot explain how it did it.
Her story broke my heart and her husband is freakin unbelievable. Can I clone him or does he have an older brother?
Dr. Afrin, in the interview, said Johanna did chemo (I assume Gleevec) but I am wondering if she tried IVIG which put my MCAS into remission? I know it's a long shot and I cannot explain how it did it.
Her story broke my heart and her husband is freakin unbelievable. Can I clone him or does he have an older brother?