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All the symptoms of dehydration, but electrolytes are fine

Discussion in 'Gastrointestinal and Urinary' started by Vincent, Mar 1, 2013.

  1. Vincent

    Vincent Senior Member

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    Baltimore, Maryland USA
    So over the last 3 years I've been to urgent care and the ER 5 times, the most recent 2 were last week. I'm permanently thirsty. I can only drink gatorade and I drink in excess of 25 8oz glasses per day, chugging it as fast as I can. My lips are always chapped and I get confused, feel sleepy when standing up, nauseous, and blurred vision. Everything but the nausea will mostly go away if I lay down. I have a feeling of derealization, trouble finding words, and trouble spelling. All I want to do is lay down all day.

    Now here is the thing, when I go to urgent care of the ER within minutes of them starting a saline drip I immediately feel better, like my brain is finally awake. As a teenager I did have orthostatic hypotension but now I do not; I acquired this after getting mono in 1993. I watched dr rowe's presentation and I believe I might have low blood volume.

    Unfortunately 99% of the dr's are clueless and I called dr. rowe's office and he is not accepting new patients. I live in the Baltimore area. I literally get so 'out of it' that I forget which target store I am in for example, because they all look the same. I literally can not perceive the passage of time, as if each event in time is not related to the one before it. I literally can not think. It has caused me to stop driving mostly; I do not work.

    I'm getting an ACTH test done next week to check adrenal function. I'm thinking a 24hr saliva might also be in order because I have trouble getting up in the morning and my sleep schedule becomes fragmented. I had at one time a circadian rhythm disorder.

    At the er I told them I get so confused I can't walk down the street and with blurred vision. The dr said 'you don't sound confused', then gave me 1L of fluids, even though I told them that is what urgent care gave me and that is not enough. I need liter after liter until I feel better. I also asked for a picc line and I was denied. Consuming the water orally does not work well enough, but an IV works almost instantly.
     
  2. Little Bluestem

    Little Bluestem Senescent on the Illinois Prairie ❀❤✿Ƹ̵̡Ӝ̵̨̄Ʒ✿❤❀

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    Did you tell them that you drink over 1.5 gallons of Gatorade a day? I would think that would make your kidneys work very hard. Have you had aldosterone tested?
     
  3. Vincent

    Vincent Senior Member

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    Baltimore, Maryland USA
    I have not had aldosterone tested.
     
  4. *GG*

    *GG* Senior Member

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    My Dr recently told me that I appear dehydrated via my bloodwork. I told him that I always feel dehydrated, only been 10 years now. I have been taking various products. Electro Mix by Alacer and Nuun natural hydration products.

    GG
     
  5. Vincent

    Vincent Senior Member

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    Baltimore, Maryland USA
    The thing is they told me my electrolytes are fine via my bloodwork.
     
  6. *GG*

    *GG* Senior Member

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    Perhaps they are not using the right indicators? Perhaps the Drs are not that good? My Dr has helped me a lot in the last 4 years.

    GG

    PM/Conversation me to look up the details, I get all my docs from my Dr, but I am not well organized!
     
  7. Emootje

    Emootje Senior Member

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  8. adreno

    adreno Learned helplessness

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    Sounds like a hormonal problem - aldosterone, as mentioned, is likely. Drinking so much probably makes things worse. 2-4 liters of fluid daily is plenty. I would try mixing your own electrolyte water, with a higher concentration of electrolytes than gatorade. My own mix is this:

    1 liter of water
    1/2 teaspoon sea salt
    1/4 glucose
    1/4 potassium citrate

    This is much stronger than gatorade. If you're constantly losing water, you need more sodium. Sometimes when I need more sodium I mix 1/4 teaspoon sea salt in a glass of water. This will instantly provide around 400mg sodium.
     
  9. Ema

    Ema Senior Member

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    I know of an awesome doctor in Columbia MD. PM me if you'd like his contact info...

    Ema
     
  10. Vincent

    Vincent Senior Member

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    Baltimore, Maryland USA
    It's ironic you say aldosterone because as a teenager I was on flourinef and compression stockings when I had the orthostatic hypotension.
     

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