The Power and Pitfalls of Omics: George Davey Smith’s storming talk at ME/CFS conference
Read about the talk that stole the show at a recent ME/CFS conference in Simon McGrath's two-part blog.
Discuss the article on the Forums.

Alice, Alice, who the beep is Alice?

Discussion in 'Action Alerts and Advocacy' started by Skippa, Aug 17, 2017.

  1. Skippa

    Skippa Senior Member

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    Stupid song.

    Anyways, I was thinking it would be good to get a thread listing all the ME advocates, who they are and what their involvement is.

    I'm always seeing people being referred to, I guess they are "goodies" from the way they are being spoken of, but I don't know anything about them.

    Today I think I saw someone called Joan Byrne, for example. Who?

    Would be like a directory thread, you'd obviously have our own @Jonathan Edwards and @charles shepherd , the Countess of Mar, the notorious C.O.Y.N.E, erm, fluge something or other, the UNREST person, Tuller, loads and loads but I can't recall.

    Davis, Marks.

    The Ozzy guy who beat PACE in court (whose name normally comes easily, but not today).

    Could have sympathetic journalists, Myhill, rose someone and husband (I think I got the right person?)

    Top scientists "dedicated" to the cause.

    All the forum members here that regularly advocate (deliberately not mentioned any 'cos I'm bound to leave some out).

    Active patients.

    Any powers/authority - MP's, congressfolks, whoever.

    What do you all think?
     
  2. Dolphin

    Dolphin Senior Member

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  3. Mary

    Mary Senior Member

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    Southern California
    @Skippa - this happens to me a lot - I'm always seeing names I don't recognize but seem to be household words in ME/CFS world - so I think this is a great idea! :thumbsup: It could be one of those permanent threads at the beginning, where it is added to, I presume alphabetically ---
     
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  4. Dechi

    Dechi Senior Member

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    I like the idea too ! :)
     
    Skippa likes this.

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