1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Science to Patients: Talking ME, Exercise and the Mitochondria - with Dr Charles Shepherd
The latest video release from the Dutch group ME/cvs Vereniging, with Dr Charles Shepherd from the UK ME Association, and announcing a live chat session to be held Thursday, April 10, 2014...
Discuss the article on the Forums.

Aging in ME/CFS, do we look older?

Discussion in 'General Symptoms' started by lucy, Jun 27, 2011.

  1. lucy

    lucy Senior Member

    Messages:
    102
    Likes:
    2
    I saw an article "Premature Aging Caused by Some HIV Drugs, Study Shows" where they say the hiv drugs damage mitochondrion. As one of the theories for CFS/ME is mitochondrion dysfunction, I thought it would be interesting to discuss if the symptom of aging is present among CFS/ME patients.

    I personally look younger (maybe mainly because I am underweight), but it seems my body is regenerating extremely slowly - last time I got sunburn, the skin started to peel off after two weeks, instead of two days.

    Also there is a test measuring end glycolysis proteins, which can be mapped to the age, and according to the test I was older by 5 years. Such results can be received with a prolonged illness or diabetes, I was told.

    Did you notice any abnormal aging?
  2. Wonko

    Wonko Senior Member

    Messages:
    627
    Likes:
    103
    England
    As far as I am aware when not crashed I look younger than my age by several years, this could just be an effect of the fact that my diet and lifestyle (eg i dont drink, or do much of anything) is healthier than the general population - ie I dont look younger, they look older.
  3. alex3619

    alex3619 Senior Member

    Messages:
    5,969
    Likes:
    7,837
    Logan, Queensland, Australia
    Hi lucy, anecdotally I have heard it said we look younger. Sometimes much younger. However, this is just skin deep - we feel much older, and I suspect our chemistry is that of an older person. None of this has any hard evidence, but I think it likely. The skin might be different for some reason, and I think we often judge age by skin tone etc. Bye, Alex
  4. rwac

    rwac Senior Member

    Messages:
    118
    Likes:
    10
    Less sun exposure could be another reason for looking younger.
  5. Esther12

    Esther12 Senior Member

    Messages:
    4,876
    Likes:
    4,174
    True. Less work/activity/injuries/alcohol could play a role too.
  6. maryb

    maryb Senior Member

    Messages:
    2,336
    Likes:
    1,245
    UK
    I'ved always looked a lot younger than my age, unfortunately the ME is dragging me forward fast, I'm digging my heels in, sparks are flying but I think its winning:(
  7. lizw118

    lizw118 Senior Member

    Messages:
    246
    Likes:
    19
    One of the side effects of the HIV drugs is a loss of fat in the face. I believe that is what causes those patients to look much older. Those drugs actually cause people to have less mitochondria than control subjects, so it is not a matter of dysfunction, necessarily, more a matter of quantity. It seems like a different issue.
    Liz
  8. Sushi

    Sushi Moderator and Senior Member Albuquerque

    Messages:
    5,345
    Likes:
    3,684
    Albuquerque
    Somewhere there is another thread on this. The general consensus on that thread was that most of us look younger than we are--me too. No idea why??

    Maybe someone who has mastered the search engine, could link this thread to the older one.

    Sushi
  9. anniekim

    anniekim Senior Member

    Messages:
    582
    Likes:
    182
    U.K
    I've been told I look younger than my age and a good friend of mine with m.e looks ten years younger than her age.

    As I read that people with m. E have a lot of oxidative stress, I thought this might mean we look older as I thought oxidative stress accelerated things like wrinkling etc (am I off the mark here?), but a lot of people with me do seem to report looking younger than their years. I do wonder whether it's due to our lifestyle of no drink, very little sun exposure etc. . .
  10. justy

    justy Senior Member

    Messages:
    2,078
    Likes:
    1,263
    U.K
    Hi, since my last relapse 3 years ago i have definately noticed an acceleration in ageing, my hair has started greying very quickly and my hands look older and wrinkly. There has been an acceleration of lines on my face also. Of course this could be my age - i am 41, and i have had 4 children (definately ages you!) I have had M.E for 17 years and before this i always looked younger than my years. I have had mito testing done and i know that i have a very high cell free DNA, which i thought could be contributing to this as well as gene blockages for SODase and some other mito disruption going on.
    Of course on the other side of things i am continually being told that i look so well -i have gained weight and have sparkly eyes and good glossy hair -mainly due to my toxin free lifestyle, early nights and supplement regime. It seems you cant win!
  11. ukxmrv

    ukxmrv Senior Member

    Messages:
    3,123
    Likes:
    1,362
    London
    Most ME people I meet look young for their age. Even a family member who gets sun exposure looks very young. It seems to be (amoung patients I know) that many people do look young and then at some stage they suddenly accelerate into a rapid decline. That is if they live that long.

    I asked one doctor and she thought that her ME patients were really looking after themselves with diet and "healthy living" (like no smoking) but I suspect that there is some other reasons for this.

    Just wished we had more data on ageing and deaths.
  12. taniaaust1

    taniaaust1 Senior Member

    Messages:
    6,754
    Likes:
    3,331
    Sth Australia
    Very interesting topic.

    Ive always looked far younger then my years.. at 35 I had people at times mistaking me for being 17-19 yrs. I once went to a nightclub for a sisters birthday and forgot mhy ID and they wouldnt let me in..all 3 of my younger sisters (up to 11 years younger then me) the guy let in and I was the only one he asked for ID as he thought i was too young, (I was in my 30s to mid 30s at the time).
    Another time I had a year 12 high school boy come onto me, he thought I was around his age. (I was in my 30s at the time).



    Now at 40 I probably look in my 20s or early 30s. I too really wonder why we look so much younger when one would think it would be the opposite case. (maybe all our supplements are helping our skins??)

    The rest of my body is like older then it should be, hair thou started to go grey at 19 years (I dye it with henna.. not one of my sisters have grey hair yet), I got osteroarthritis diagnosed in several places by scans when 35 yrs .. now at 40 Ive got reading glasses cause my eyes are aging. Ive also got my frozen shoulder before I was 40 (they are rare in younger age groups).
  13. alex3619

    alex3619 Senior Member

    Messages:
    5,969
    Likes:
    7,837
    Logan, Queensland, Australia
    Hi taniaaust1, I too started to go grey at an early age. I do wonder if that is connected with ME/CFS. Bye, Alex
  14. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

    Messages:
    1,767
    Likes:
    313
    Southern USA
    We can't forget that most people need reading glasses at 40 and many get grey early. My hubby and even my son got grey early. They are far from having CFS.

    I look younger and I am sure that is from staying out of the sun. Supplements and hormones help too. I like most people have to take Vit D3 since I am not outside much, especially when hot.
  15. taniaaust1

    taniaaust1 Senior Member

    Messages:
    6,754
    Likes:
    3,331
    Sth Australia
    It depends on the family.. if its in ones genes one can expect it.. if it isnt in the genes.. you dont expect it and it may be indicating something difference about you then the rest of your family.
  16. lucy

    lucy Senior Member

    Messages:
    102
    Likes:
    2
    Thanks for replies! We can almost make ME/CFS awareness slogan: "Want to look younger? - All you need is ME/CFS" and we write all the symptoms as side effects in small font :) It could also be promoted as the only psychological disorder which makes people look younger (Simon Wessley should be invited to explain the specifics) - hopely the sarcasm of impossibility would be an effective advertisement.

See more popular forum discussions.

Share This Page