With PACE, AfME has an ideal way of showing that they have changed and now recognise that patients deserve to be spoken to honestly and with respect. Their insider role means that they're in a powerful position to criticise the way in which results were misrepresented and spun, and call for the release of results for the outcome measures from the protocol. They keep refusing to do so. They should be calling for the release of more information... instead they're providing statements to QMUL for fighting against FOI requests and help keep patients in the dark. I just re-read the statement... How could it encourage hope? Edit: My comments in bold. As a more minor aside about this project (the specifics of which I actually think are less important that the politics): Why not use other patient groups who suffer from problems with pain as a control? Otherwise, how will you know whether you are increasing your understanding of why patients with ME/CFS patients suffer so much pain, rather than just finding normal responses to chronic pain? As the project is currently designed, it looks very likely to end up with results that are of no value to patients, but can be used to justify more manipulation/rehabilitation from White.