Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Advocates to speak up on 'Personal & Political' on November 18th.

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Nov 14, 2013.

  1. Nielk

    Nielk

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    Ella Peregrine posted on Facebook:

    On Monday, November 18, from 11 a.m. to 1 p.m. EST (UTC -05:00), Stephanie Fraser, host of Personal & Political, will devote her radio show to Myalgic Encephalomyelitis (ME).

    Her guests will be Mary Dimmock, Jen Brea of Canary in a Coal Mine, and Ella Peregrine.

    They going to be talking about the efforts to stop the DHHS contract with IOM, the importance of recognizing ME as distinct from "CFS," and the amazing current success of and potential for Canary in a Coal Mine to change public awareness of this disease. ...[​IMG]

    http://www.personalandpolitical.net/
     
    Ren, aimossy, alex3619 and 4 others like this.
  2. justinreilly

    justinreilly Senior Member

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    NYC (& RI)
    Yay!
     
    aimossy likes this.
  3. Nielk

    Nielk

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    Posted on Facebook -

    TODAY! ---> from 11 a.m. to 1 p.m. EST (UTC -05:00), Stephanie Fraser, host of Personal & Political, will devote her radio show to Myalgic Encephalomyelitis (ME).

    Her guests will be Mary Dimmock, Jen Brea of Canary in a Coal Mine, and yours truly.

    We're going to be talking about the condition and some basic history/background, the importance of recognizing ME as distinct from "CFS," the efforts to stop the DHHS contract with IOM, and Canary in a Coal Mine, which has rapidly built tremendous public response and has real potential to change public awareness of this disease.

    The show will be archived for later listening on her website, linked here, and you can listen during the show via streaming at wgdr.org -- there's a "listen live" button.

    I want to thank Stephanie for this opportunity, and ask you to please help spread the word so people know to tune in. When it's available in archived form, I'll be sure to share that link, too.
     
    Izola and justinreilly like this.
  4. Bob

    Bob

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    England (south coast)
    Last edited: Nov 18, 2013
    Nielk and Purple like this.
  5. Nielk

    Nielk

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    It just started.
     
  6. Nielk

    Nielk

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    I hope this reaches a large audience! If you want family or friends to understand ME, it would be good for them to listen to this
     
  7. Nielk

    Nielk

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    A great overview of the history by Mary Dimmock!
     

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