I have spent more time lately doing advocacy work lately, notably aimed at the Canadian government. I have little response from them despite sending letters to health minister, public health agency, the national health research body, my own MP and else. What I wonder today is, what is effective and what is not effective in doing advocacy campaigns? Is social media helpful even though I don't get answers? What angle should be explored? Stigma and discrimination compared to other diseases? Numbers of patients sick? ME being more prominently a woman's disease? How do you address ME not belonging to any medical specialty? I think that at this time, a little strategy could help. I will consult with a patient advocacy organization that I have in mind but I thought I'd ask the experts over here. Thanks !