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Advice on how to proceed with my symptoms

Discussion in 'General Symptoms' started by Chziime, Aug 17, 2015.

  1. Chziime

    Chziime

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    Hello, this is (probably?) my first post here. Let me know if I'm unclear about anything, as one symptom I have is a lesser cognition.

    In Mid-April, I had a very sudden, scary episode, during which I was short of breath, incredibly thirsty, had rushes to the head, and felt anxious. Klonopin, my very-rarely as needed anxiety med, did not help at all - it made me even dizzier.

    A few days later, working out at the gym promoted a similar episode, and before this I have lifted heavy weights for many years. In the weeks before these episodes, I had a viral infection for a week, I used nicotine lozenges slightly heavily, and I experimented with bacopa on and off - which may have had a negative effect on my anxiety (and raises acetylcholine...). A little over a month later, I started seeing a cardiologist, and after a few tests later, I was diagnosed with slight cardiomyopathy with an ejection fraction of 50% (normal is 55-70).

    Since then, I have slowly eased up with stress reduction, as well as taking:
    L-Carnitine Tartarate (250mg)
    Ubiquinol (50-100mg)
    Hawthorn extract
    Arjuna extract
    Carvedilol (alpha/beta blocker, 6.25mg/day)
    Ashwagandha

    As well as daily walking.

    I have taken daily for a while:
    60mg remeron
    40mg baclofen
    1000mg depakote
    Magnesium

    The dizziness has mostly gotten better, but i still feel a greatly compromised stress response. Today, I just had another minor episode, but I had a longer walk than usual last night, alongside some stress of getting lost in the woods at night.

    I have been reading on this forum, and there are some symptom overlaps it seems (Such as the post-exertional malaise, physical or mental, though this fatigue seems to be cardiovascular. Either way, I went from strength training with no problem, to having anxiety about whether I'm walking too much). I am also generally scared about whether this will get better or not. Whenever I think it does, stress just builds up with little to no respite in sight.

    I have seen a wonderful integrative psychiatrist for a while, but I am wondering if there are any other venues I could pursue to my healing process. I meditate and do yoga, but tension and stiffness can make it difficult sometimes.

    Thanks so much for any advice!!!
     
  2. Chziime

    Chziime

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    What prompted me to write here was that I had my first episode while using nicotine, and I recently read a thread about acetylcholine sensitivity causing symptoms.

    My episode today was also more than just minor- I felt an extremely uncomfortable head rush, as well as tightness and almost pain in my glandular area of the throat.
     
  3. minkeygirl

    minkeygirl But I Look So Good.

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    Since you had a virus when all this was happening you might want to look into that.

    Many of us here have viruses, HHV6, cmv, ebv.

    Other smarter people will offer more suggestions
     
    Tammy and alkt like this.
  4. Hutan

    Hutan Senior Member

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    Hi @chzlime, check whether you have orthostatic intolerance. There's lots of information on that in this forum including instructions for a test you can do at home. POTSUK is a good website.

    If you have orthostatic intolerance, you are likely to get dizzy when standing. There is a lack of blood flow to the head and this can result in a surge of adrenalin that can cause the anxiety response. It also can cause a tightness around the neck and shoulders.
     
    alkt likes this.
  5. halcyon

    halcyon Senior Member

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    If you were previously healthy and had sudden onset of cardiomyopathy after an illness I'd look into testing for cardiotropic pathogens: lyme, coxsackie B, echovirus, parvovirus B19, etc.
     
    alkt likes this.
  6. Chziime

    Chziime

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    Thanks everyone. I haven't really noticed anything relating to OI, but I did have my episode today soon after standing up from being in bed a while.

    What's the value in testing for viruses? Are certain ones more treatable, and if so, would that suppress any further symptoms or damage?

    Another symptom I have is soreness all over, which happens more readily the day after exercise, even walking. In the past, post-onset muscle soreness (POMS) wasn't too strong for me. My beta-blocker caused this a little bit at first with a higher dose, but I take less now.

    I also used to have symptoms of histamine intolerance, but remeron takes care of most of that, being a strong H2 antagonist. It is still probably an issue, though.
     
    alkt likes this.
  7. alkt

    alkt Senior Member

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    cardiomyopathy is well known problem after a viral attack many of your symptoms can be explained by this and taking nicotine can also cause light headedness and high bloodpressure i would strongly suggest you read the adverse reactions part of your nicotine llozenges exceeding the daily dose can be lethal. and packing up smoking or reducing your nicotine intake will cause added anxiety.
     
  8. JaimeS

    JaimeS Senior Member

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    @Chziime , Bacopa monnieri is an acetylcholinesterase inhibitor, so far as I am aware (Aguiar & Borowski, 2013). It might actually help with the symptoms you're describing - I take what is essentially an herbal ACE inhibitor for my orthostasis (Vinpocetine, from Vinca sp.), and it's been really helpful, though it felt a little weird at first.

    You said your throat hurts? When's the last time your thyroid was checked? Hip's roadmap could be of some use in determining what to do next: just don't read it all at once. Take the map one step at a time, paying especial attention to the things often confused for ME.

    Viruses can be addressed via antivirals. I certainly also have some bacterial infections that contribute to my condition as well. Knowing what they are has helped me choose antibiotics as well as herbal remedies. For example, my particular brand of pneumonia doesn't like berberine, so I have goldenseal tincture sitting next to me pretty much always. My prescribed antibiotic are for my specific gut pathogens. It's important to have medicine that is targeted for your particular bug, or you can end up poisoning your system and killing even the good bacteria off. A skilled physician will hold off on the mustard gas and give you something more targeted.

    Definitely ease off of the nicotine. Slowly.

    -J


    Aguiar, S., & Borowski, T. (2013). Neuropharmacological Review of the Nootropic Herb Bacopa monnieri. Rejuvenation Research, 16(4), 313–326. doi:10.1089/rej.2013.1431
     
    alkt likes this.
  9. Chziime

    Chziime

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    Oh, I quit nicotine immediately after this all started in April.

    Yes, I know Bacopa is an acetylcholinerase inhibitor, but I read a popular topic here that theorizes that sensitivity to acetylcholine (which Bacopa would raise) could cause CFS symptoms.

    Vinpocetine increases blood flow to the brain, right? So that helps your blood flow orthostasis issues?

    My next step will be to pay more attention to laying down / standing, which seems to be more and more of a lead the more I think about it.
     
  10. JaimeS

    JaimeS Senior Member

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    Yes; though the first time I took it, it made me a bit dizzy, and the second time, too. However, I could feel blood rushing back to my head, which was awesome. I've been taking it for ages and it's one of my can't-live-without-it supplements.

    -J
     
    alkt likes this.
  11. Chziime

    Chziime

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    Is there any way to test for such cardiotropic viruses cheaply? Or would it be out of pocket per-virus test fee?
     

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