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Well, the results are almost "normal" except one thing the cardiologist (who apparently co-developed the HUT) didn't understand, so he's sending me to a blood pressure specialist.
He had me do the Vasalva manoeuvre while lying down, and said it was perfect (he explained the significance but I forget now--I was a bit spacey and not holding my notebook.
The results of the tilt itself were that the heart rate was normal, so I don't have POTS (I didn't think I did). The BP rate was a band of a squiggly line (I think the sys and dias alternating?) that was consistently the same width, and with the range often within normal. What he couldn't explain was that the whole band dipped and rose several times. He said this is indicative of falling asleep (not fainting) and had asked me at one point if I was OK, and at another point to open my eyes.
Any wisdom on what that might indicate?
He also said that I perhaps should be out of bed more (I'm often lying down b/c I feel better than sitting/standing, but then don't feel tired when lying down. He said the link between CFS and dysautonomia presented by Johns Hopkins, etc. could stem from deconditioning (I didn't bring the JH info, he was already familiar with it). I wish I'd said my lightheadedness started with my crash, when I was the fittest I've been in my life. I also wish I'd asked him to explain why I did so badly on the home test.
Thanks for listening and any further insights!
He had me do the Vasalva manoeuvre while lying down, and said it was perfect (he explained the significance but I forget now--I was a bit spacey and not holding my notebook.
The results of the tilt itself were that the heart rate was normal, so I don't have POTS (I didn't think I did). The BP rate was a band of a squiggly line (I think the sys and dias alternating?) that was consistently the same width, and with the range often within normal. What he couldn't explain was that the whole band dipped and rose several times. He said this is indicative of falling asleep (not fainting) and had asked me at one point if I was OK, and at another point to open my eyes.
Any wisdom on what that might indicate?
He also said that I perhaps should be out of bed more (I'm often lying down b/c I feel better than sitting/standing, but then don't feel tired when lying down. He said the link between CFS and dysautonomia presented by Johns Hopkins, etc. could stem from deconditioning (I didn't bring the JH info, he was already familiar with it). I wish I'd said my lightheadedness started with my crash, when I was the fittest I've been in my life. I also wish I'd asked him to explain why I did so badly on the home test.
Thanks for listening and any further insights!