I sometimes forget that something like this could occur due to some attitudes in society.Two participants discussed their reluctance to be referred to specialist services because of misunderstandings and stigma associated with CFS/ME:
“When my GP said I’d like to refer you I just laughed…and said, it’s terrible but I did, I said oh isn’t that for people who don’t like work and she really like growled at me in a nice way and said I think you’ve got a lot to learn” [P7]