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Adrift in Arizona

Discussion in 'ME/CFS Doctors' started by Creekee, Feb 15, 2013.

  1. Creekee

    Creekee Senior Member

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    Arizona
    Has anyone found a decent doctor in Arizona? I'm in Prescott; can travel to Scottsdale or Phoenix on a good day. I do have a good DO in Scottsdale who may be open to helping, but she is not ME knowledgeable.

    Have seen Dr. Fry in Scottsdale with mixed results. Am positive for his protomyxzoa rheumatica which adds another layer of confusion to seeing other doctors.

    Any input would be most appreciated. Big thanks!

    Creekee
  2. valentinelynx

    valentinelynx Senior Member

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    Tucson
    If you do find one, let me know! I travel to California to see Forest Tennant, MD who helps mainly with pain issues. I'm in Tucson. Last ME knowledgeable MD I saw was Jay Goldstein (it's been awhile :p)
  3. angieishere44

    angieishere44

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    Apparently as long as we live in Arizona we are non-entities. It is extremely depressing to go to these sites, hear all this uplifting hopeful information about knowledgeable dr.'s and treatment plans that treat the whole person, not to mention actual solutions for some people. Yes for us even a 50% improvement is like a cure, and yet some of us just don't rate these miracles beyond reading about them because of where we live or how much money we don't make. I apologize if I sound bitter but that's what this disease does to me, it destroys my life a little bit more everyday and the only help for that would be hope and I don't have any of that.
    Izola likes this.
  4. snowathlete

    snowathlete

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  5. angieishere44

    angieishere44

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    I appreciate the effort and the knowledge that Dr. Furrow treats CFS, I already have a rheumetologist and a neurologist treating my Fibromyalgia cause its a "real" disease now. However every other Dr. on those list who treat CFS are Natureopathic Dr.s which means not covered by insurance and not available to the poverty stricken. Yes I know I should be happy that anyone get releif from this disease but i have a hard time knowing the only difference between me and them is the size of their bank account.
  6. Creekee

    Creekee Senior Member

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    Arizona
    snowathlete,
    Thanks much. There are some names on that one that I haven't come across before. I'll do some investigatin'.
    snowathlete likes this.
  7. paintngirl

    paintngirl

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    Phoenix, Arizona
    Hi Creekee,
    I live in Peoria, Az. I looked at the website from snowathlete to see if I recognize any of them. In Peoria, Joy Schechtman, Rhumatologist, does not take anybody that has anything other than arthritis. I called her office and got a recording that said she didn't treat any patients with Fibromyalgia. Trent Smith in Peoria, isn't at that location anymore that I know of. I see a Rhumatologist there and I don't see his name on the door. I saw him twice and the 2nd time he told me in a nice manner to see a Psychiatrist for med. management. Didn't go back to him for sure! I've heard Paul Howard, Rheumatologist in Scottsdale, is good but no personal experience with him. Steve Fanto, Scottsdale, I know of him only from years ago when they were having a lot of seminars about Fibromyalgia, he was a speaker at a lot of them, again I've never been to him. Lloyd Armold is retired. Raymond Mirise, Rheumatologist, Glendale, saw him before I was actually diagnosed. In the beginning, no one knew what I had (I'm sure you all know about that) and he said he couldn't find anything wrong with me and that perhaps I needed to see a Psychiatrist. Eric Peters, I saw for several years. He was big on Physical Therapy which made me worse because I'm exercise intolerant. I also never knew how he was going to act. Sometimes he could be more aggressive with some treatment and the next time he just couldn't be bothered. Some in my Fibro grp. liked him but said the same thing about his attitude. Jon Star is in the same office, and one lady in the Fibro Grp. told me everytime she went to see him she would be in tears. She said she finally figured out if you really talked about how great he was she could get along with him. My neighbor saw him a few times and they got in an awful argument in the hallway because he didn't like some of the questions she was asking. She had some medical background and I guess he didn't like answering some of the questions. John Tessor is also with that group. If you go to Peters,Star,Tessor and there are more Dr.s in that group, beware, they won't let you change to another Dr. in that group. When asked, I was told that was their policy. Anyway, Dr. Tessor I liked and a lot of the ladies in the Fibro Grp. really liked him. I only know him because I had to take my Mom to him because her regular Dr. sent her to him. She's 86, has Fibro pain very bad and the Vicodin wasn't helping her. Well, he wouldn't give her anything stronger. I take her to The Arizona Pain Specialists. They put her on Morphine and she doesn't have so much pain anymore. Sorry this is long, but hope it helps.
    Izola and Creekee like this.
  8. Creekee

    Creekee Senior Member

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    Arizona
    paintngirl,

    Thanks so much for the great reviews! I never could've come up with all that info on my own. Really appreciate you taking the time to write.

    I had a first visit with a new GP here in Prescott last week and felt like she will at least be supportive. Not an ME doctor, but was okay with my T3-only thyroid treatment, bio-hormone supplementation, and complete refusal to exercise. She accepted the info I brought her about the protomyxzoa infection and promised to read up on it. Definitely better than my previous GP, although that was a pretty low bar.

    Also gonna go back and see Dr. Fry next week in case he has anything new to offer.

    Hard not to get discouraged about our options here in Arizona...
    snowathlete likes this.
  9. avreed

    avreed

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    SE Florida
    Hello to all in Arizona,
    I live in Florida and was considering traveling to Scottsdale to see Dr. Martha Grout at http://www.arizonaadvancedmedicine.com. The website is enormous with lots of information on many illnesses and disease topics. She sounds smart and appears to be up on some unconventional treatments for various diseases including ME/CFS. However, I cannot find a single person or patient feedback from anyone who may have seen her. As she is in AZ I was wondering if any of you had heard of her or seen her. Any feedback would be appreciated. Florida is definitely the black hole of the universe for practitioners of any sort who know what they are talking about. I did see Klimas years ago but she didn't offer any treatment or solutions but gladly took my $10K.
  10. Creekee

    Creekee Senior Member

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    Arizona
    Hi avreed,

    I've seen some comments on Dr. Grout by members of this forum:

    http://health.groups.yahoo.com/group/ArizonaLyme/

    Don't know anyone personally who has seen her.

    Will arm wrestle you for that "black hole of the universe for practitioners" title!

    Lots of good luck on your search. Please let us know how it goes.

    Creekee
  11. avreed

    avreed

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    SE Florida
    Thanks Creekee! I'll check out that website and see what others are saying about Grout.

    Please feel free to use "black hole of the universe for practitioners" in any circumstance that warrants it. I'm sure Florida does not have an exclusive on hopelessly inept and unenlightened practitioners. Unfortunately for many of us, this frequently seems to be the case.

    And if wishes were horses, all men would ride...

    Best wishes to all and happy trails.
    Izola and Creekee like this.
  12. Izola

    Izola Senior Member

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    We got a lot of ruts in them trails.

    Hey, Creekee, your new doc said she'd read De. Frye's article on the the protomyxzoa infection? She sounds really nice and patient oriented.

    I was wondering whether Dr. Frye, made all that stuff up. Years ago, his website sounded a little scary.

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