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Adolescent and parent perceptions of fatigue in paediatric multiple sclerosis

Discussion in 'Other Health News and Research' started by Kyla, Jul 5, 2016.

  1. Kyla

    Kyla ᴀɴɴɪᴇ ɢꜱᴀᴍᴩᴇʟ

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    http://www.ejpn-journal.com/article/S1090-3798(16)30088-5/fulltext

    ugh. I don't know whether to feel relieved that these nutbars have moved (some of their attention) on to a different disease, or horrified that they have found a new set of children to torment and stigmatise.

    I'm sure you can all guess without reading the paper what their forgone conclusions and recommendations are,
    If not I have highlighted a relevant passage underneath the abstract.

    (*The bolding is mine)
     
  2. Sidereal

    Sidereal Senior Member

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    Vile.
     
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  3. shannah

    shannah Senior Member

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    Perhaps they'll be digging their own graves, especially if Naviaux/Davis publishes some enlightening mito findings.
     
  4. Cheshire

    Cheshire Senior Member

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    Someone should recall these people that psychologists are supposed to help people, not stigmatize them. Even if fatigue in MS were linked with low mood, I don't see how this ridiculous speech about faulty cognition and maladaptive behaviour, which is profoundly accusatory, could be useful.

    They don't even aknowledge the dreadfull fate these young patients are facing.

    And once again, corelation is causation...

    Yurkkk
     
    Last edited: Jul 5, 2016
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  5. A.B.

    A.B. Senior Member

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    Chalder should not be allowed to work with patients or be able to influence their treatment. She is dangerously crazy.
     
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  6. A.B.

    A.B. Senior Member

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    On the bright side, they really are starting to sound more and more crazy. In CFS there is so much uncertainty and lack of good information that one can excuse the average person for finding these cognitive behaviour narratives plausible. In MS convincing people that the fatigue is psychosomatic probably won't be as easy.
     
    Last edited: Jul 5, 2016
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  7. sarah darwins

    sarah darwins I told you I was ill

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    Good grief. Yet again you wonder, how do they get away with this?

    er ... "a wider body of evidence has supported"? Really? If you look at the references for the paper, more than half are to papers co-written by these same people, the rest nearly all by close allies. Wider body of evidence my arse.
     
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  8. A.B.

    A.B. Senior Member

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    Not to mention that their definition of evidence is crazy. For them, a mere correlation plus the mere theoretical possibility (with no consideration of alternative explanations) is already evidence. So what they really mean by evidence based is "it could be interpreted in this way".

    One of these days they're going to realize that they walked over a cliff and have no solid ground under their feet, and that a hard impact with reality is imminent.
     
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  9. Sidereal

    Sidereal Senior Member

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    "Cognitive factors such as perceiving fatigue as an uncontrollable, unpredictable symptom"

    It fucking IS uncontrollable and unpredictable. Are they seriously suggesting that MS patients have control over their fatigue? o_O
     
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  10. Snowdrop

    Snowdrop Rebel without a biscuit

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    The bit you highlighted shows that our expectations can be that BPS will likely not leave us alone any time soon. Any biological findings are meaningless in the face of our psychological perpetuating. I hope other scientists start to get on board to speak out that that belief is not science.
     
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  11. Roy S

    Roy S former DC ME/CFS lobbyist

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    Hopefully the MS community is well established and very well organized to deal with this.

    The Emperor's New Clothes is probably not a new story there in merry olde England. :)
     

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