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Add Dr. Ellie Stein to the signatories of the 35 experts' letter to HHS

Discussion in 'Institute of Medicine (IOM) Government Contract' started by Nielk, Oct 18, 2013.

  1. Nielk

    Nielk

    Messages:
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    Queens, NY
    Please support the consensus against developing yet another definition for ME/CFS
    October 18, 2013 at 10:30am
    a note from Dr Ellie Stein

    On September 23, the department of Human Health Services in the US announced that it will begin working on the initiative with the Institute of Medicine (IOM) to begin work to develop new “clinical diagnostic criteria” for ME/CFS. That announcement can be found here: http://news.silobreaker.com/hhs-enters-into-contract-with-iom-to-redefine-mecfs-experts-object-september-23-2013-5_2267123116683558990

    The same day, a large group of the leading researchers and clinicians in the field of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) sent an open letter to Health and Human Services Secretary Kathleen Sebelius supporting the use of the Canadian Consensus Criteria (CCC) as the research and clinical case definition for ME/CFS.

    I gave my signature but it somehow didn’t get included on the final copy of the letter. We are calling for HHS to follow our lead by using the CCC as the sole case definition for ME/CFS in all of HHS’s activities related to the disease and strongly urged HHS to abandon its plans to contract the Institute of Medicine who has no knowledge or experience with ME/CFS to develop new clinical diagnostic criteria.

    Although this action by the US Government is American, if another definition of ME/CFS is developed by people who have no expertise in the field, it will add to the confusion world wide about how to diagnose ME/CFS and it will affect us here in Canada. Please support the CCC by signing the petition at the link below and spreading the word to your networks.

    The Sept 23, 2013 open letter from ME/CFS researchers and clinicians to Secretary Sebelius can be found here: http://bit.ly/15npS9B

    A world wide petition against this effort can be found at: http://www.thepetitionsite.com/898/238/310/thank-you-to-mecfs-experts/

    Ellie Stein
    Eleanor Stein MD FRCP(C)
    Psychiatrist in Private Practice and
    Assistant Clinical Professor, University of Calgary
    4523 16A St. SW
    Calgary, AB T2T 4L8
    Ph: 403 287-9941
    FAX: 403 287-9958
    Email: espc@eleanorsteinmd.ca
    Web: www.eleanorsteinmd.ca
  2. Chris

    Chris Senior Member

    Messages:
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    Victoria, BC
    Welcome to a Canadian supporting the CC definition! It is not directly our fight, but yet it is--the outcome will affect all of us. Chris
    justinreilly and Delia like this.

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