The power and pitfalls of omics part 2: epigenomics, transcriptomics and ME/CFS
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Acyclovir for CFS & meniere's - Experiences, hair loss?, general thoughts?

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Gecko, May 18, 2015.

  1. Gecko

    Gecko

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    Hi all,

    I have been put on Acyclovir, 400mg 3 x per day for Chronic fatigue (and also through my own research for Menieres).

    I have been on it for about a week with no changes. I have also just started taking L-Lysine alongside.

    Does anyone have any comments or experiences on Acyclovir?

    I am terrified by the idea of hair loss that I keep reading about. To the point where I'm considering stopping it. I've read people saying it hasn't grown back after losing it!

    Does anyone know how much of a risk this is, how long it might take for the side effects (mainly hair loss) to start and if it would grow back fully if it did thin/fall out?

    On the other side, how long might it take for me to know if I'm getting benefits from it?

    Many thanks!
     
  2. anniekim

    anniekim Senior Member

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    I took 4 x 500mg acyclovir for about seven months. Sadly, I had no benefits but also no side effects. Hope it helps you with no to minimum side effects
     
  3. minkeygirl

    minkeygirl But I Look So Good.

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    I was taking about 1500 mgs and had no problems with it. I also noticed a subtle difference in my energy, maybe 2 months in? Not anything huge but I could talk more easily and do a bit more (within reason) without PEM. Definitely worth it for me. I stopped only because things went crazy in my life causing a crash and then I went on Famvir.

    I would give it some time and see how it goes. I never heard of hair loss being a side effect from it. The benefits I think outweigh your concern.

    Make sure you drink lots of water with it.
     
  4. cb2

    cb2 Senior Member

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    minkeygirl how come you went on famvir the second time instead of acyclovir? i too was taking acyclovir and didnt have any issue with hair lose .. hope this helps!
     
  5. SOC

    SOC

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    If your "chronic fatigue" is mild enough that you're more worried about hair loss than your health condition, I'd say the acyclovir isn't worth it. ;)

    If you have documented pathogens that need an antiviral, there are other AVs you could look into. However, I wouldn't suggest AVs unless you really need them. Taking them just for fatigue probably isn't worth any potential side effects.
     
  6. cb2

    cb2 Senior Member

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    SOC as far as the
    documented pathogens.. does Dr. Lerner use the IGG levels or? is there a place i can look to see ? I go to dr montoya's clinic at stanford..
     
  7. SOC

    SOC

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    If Dr Montoya's clinic is recommending Valtrex for you, then I imagine you really need it. In that case, I'd be more concerned about dealing with pathogens that could be causing serious health problems than with hair loss. ;) Having less hair will be small potatoes if you can't work, or socialize, or even get out of bed.
     
    cb2 likes this.
  8. cb2

    cb2 Senior Member

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    i started a new thread a bit ago about acyclovir vs valtrex... it would be great if you feel like taking a look
     

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