1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Brain Cells Making us Sick? The microglia connection in ME/CFS & Fibromyalgia
Simon McGrath looks at theories that microglia, the brain's immune cells, could trigger and perpetuate the symptoms of ME/CFS and fibromyalgia.
Discuss the article on the Forums.

Acute G.I. episodes

Discussion in 'Gastrointestinal and Urinary' started by Dainty, Jul 14, 2011.

  1. Timaca

    Timaca Senior Member

    Messages:
    419
    Likes:
    72
  2. taniaaust1

    taniaaust1 Senior Member

    Messages:
    7,742
    Likes:
    4,613
    Sth Australia
    ohh sorry to hear that. I really hate all the laws and regulations which get in the way as if having this illness wasnt enough.

    best luck with the specialist.
  3. Dainty

    Dainty Senior Member

    Messages:
    1,353
    Likes:
    519
    Washington State
    Thanks, tania.

    ottiebow, thank you, I'm going to follow up on this. Initial research looks like it might be a possibility. Would be so nice to have an answer.
  4. Dainty

    Dainty Senior Member

    Messages:
    1,353
    Likes:
    519
    Washington State
    Another thread reminded me that I ought to write an update here. I expect this post will rather conclude the matter, as I am happy to report that I do not anticipate another acute episode hitting again.

    In February was the first time the cranial osteopathic work I'm doing focused on my abdomen, and I had an acute episode the next day. At the time I assumed it was coincidence, but did suspend further treatments. From that time on I had several months of what I called "partial episodes" that became more regular until it was daily, then all the time. My abdomen was so tender I couldn't even touch it myself let alone have a seatbelt over it. My weight dropped to 78 pounds and I was on the verge of intravenous feeding just to keep from wasting away. I had a CAT scan done and saw a neurologist and two G.I. specialists who were both excellent but - by their own admission - unable to help. The second one advised I travel cross country to the Mayo clinic, where he said even they would likely not have answers but it was my best hope.

    After a few months the symptoms began to abate, and removing some foods I had added to my diet also significantly contributed to the reduction in symptoms, which were beginning to mimick an ulcer and may have in fact been one. In any case, upon returning to my D.O. he asked and I agreed it best to avoid direct work on the abdomen, but instead our plan was to "sneak up on it" by working around it.

    One average treatments are generally about 3 weeks apart becuase it takes a while for the body to integrate the structural changes. 2 weeks after the treatment a rib on the right side of my back that's been poking me in the lungs for years finally slipped into place, and a few hours later there was a major shift in my abdomen. I have an artery that curls around to he left of my belly button instead of going straight down (which always startles massage therapists to stumble upon a pulse where there shouldn't be one) and what happened was over the course of about 10 minutes I felt something moving from the left towards the center, as if a giant hand was causing it to happen. So weird. It took my body time to adjust to the change as I was overwhelmed with nausea for a time and a few days of being very careful with my body because moving the wrong way would cause a tearing sensation.

    That happened about a month ago. Since then, I've had other effects on my abdomen. A few weeks ago the entire lower part of my abdoemn suddenly released, as if I had been holding the muscle tense all my life and didn't know it. I didn't realize it was possible for that area to be loose, but suddenly it was, and the relief was significant.

    I had a treatment about a week ago and it was the first time we had worked on my pelvis, which is tilted. A few days ago my pelvis began to move, and things moved in my abdomen as well. The right side of my abdomen is now loose and getting looser still as it keeps adjusting, and the left side hasn't even begun to loosen up yet. This process isn't easy...every time I feel a structural shift in my abdomen I become nauseous, my entire abdomen swells up for days and there are bowel changes as well.

    What has me excited is that with this latest set of releases in my abdomen, the thing that triggers the episodes no longer seems to be a problem. In all these months before I could feel when I was on the verge of an episode, it's something inside and a bit to the left of my stomach. Every time I exerted pressure with a bowel movement, or manually put pressure on my abdomen, or my intestines were moving stuff past a certain point I could feel it about to trigger and I would try to be very careful with movement to keep that from happening. As of 2 days ago, that's completely gone. Something has changed structurally so that whatever nerve was being bothered is now no longer grumpy.

    My abdomen still has a long way to go, but it looks like I can at last close the book on this mystery and I'm on a good path for healing it. Thank you again for all your replies.
    GcMAF Australia, Timaca and Wayne like this.
  5. SOC

    SOC Moderator and Senior Member

    Messages:
    5,208
    Likes:
    6,072
    USA
    Congratulations, Dainty! How wonderful that you're making such amazing progress on those horrible GI issues! Who would have guessed that cranial osteopathy would be the trick?
  6. richvank

    richvank Senior Member

    Messages:
    2,717
    Likes:
    738
    Dainty, this is just wonderful!! Wow! Thank heaven for your osteopath!
    Do you have any idea how these structural problems came about? Have you
    had them all your life, or was there a physical trauma that caused them, or what?
    This is amazing!

    Best regards,

    Rich
  7. MNC

    MNC Senior Member

    Messages:
    162
    Likes:
    37
    The 5 foods you eat are terrible for us, but also for anyone with a delicate digestive system.

    All you eat is FAT, sugar and the worst of the proteins, beef.

    I have similar problems to yours, I am very ill in my digestive system with similar crisis of diarrhea and vomitng, even with syncope, also constipation, gas... it is just wild.

    So far I am controlling it through diet and the first thing I learnt was to stay very far away from fats and sugars. Butter, coconut oil, beef, hone and potatoes are a lethal combination for the healthiest stomach. They create such amount of gas and digestive difficulties that must be a real bomb for anyone. If you have been eating ONLY that for long I am not surprised you are having those reactions.

    Check your gallbladder for stones and check your liver for being fatty, enlarged or with elevated transaminases, cholesterol and also the triglycerids. I would be surprised if they aren't all sky high.

    My advice is to eat fat and sugar free. Zero dairy, oils of any kind, beef, animals with fat, sugars of any kind and potatoes. Potatoes can create a lot of gas too.
  8. Dainty

    Dainty Senior Member

    Messages:
    1,353
    Likes:
    519
    Washington State
    Rich,

    My osteopath has stated that I have strains that date back to fetal formation in the womb, and also some from injuries (I was a gymnast for several years). I would suspect this one is more the former, but haven't inquired of the particulars.

    MNC, I appreciate your suggestion. You may note that contrary to your theory I have gone several years with this restricted diet being the only things I could eat and not have problems. To follow your advice would mean consuming nothing at all, which I had to do in the past receiving feeding tube formula and I.V. nutrition before I discovered the foods that worked for me. I was literally incapable of eating any other foods due to the drastic consequences that would follow. As my recent reply indicates, it is clear that the crux of my abdominal issue is elsewhere. I did had a CAT scan done and there is no issue with my gallbladder or liver.

    Again thank you for your reply and I'm glad you have some answers that work for your own health.
  9. MNC

    MNC Senior Member

    Messages:
    162
    Likes:
    37
    Wow. Sorry then.

    I got an x-ray and ultrasonography yesterday and I seem to be full of stones. A huge stone in the gallbladder, also in the kidney and the bladder... many naturopaths say that when there are stones in the gallbladder there are also in the liver.

    Do you have stones?

    Wishing you the best, my apologies for my wrong comment.

See more popular forum discussions.

Share This Page