pibee
Senior Member
- Messages
- 304
I am confused about all activity level measures.
Many mention time in bed, but I am confused does this mean absolutely no activity (no computer, talk, video, tv), real resting, or this means if you lay and do all of the mentioned?
Because I have strong issue with orthostatic intolerance, whenever I can i spend time half laying.
But I never really do nothing, I just do all computer work in half laying state.
When I sit (usually out of house, in company etc) I dont feel problems but when alone i spend my time like on the photo.. but always "active" mentally.
so does this count as being in bed? or people really mean.. doing nothing and being in bed?
another issue is for example with dr Lerners activity levels. I'd fit 7 (able to work sedentary job, light housekeeping and socializing, also i'm able to do light sport (like dancing, skating), but i still need to lay down when on computer instead of sitting).. but i have big delayed sleep disorder, meaning i rarely wake up before noon, so this activity levels dont real take into consideration stuff like sleep disorders that are common in ME. So based on this EIPS, i have no idea where I fit.,..and if laying on the side while doing computer work counts as time in bed..
I'd like to know to track my progress and get a better idea in general where i am..
Many mention time in bed, but I am confused does this mean absolutely no activity (no computer, talk, video, tv), real resting, or this means if you lay and do all of the mentioned?
Because I have strong issue with orthostatic intolerance, whenever I can i spend time half laying.
But I never really do nothing, I just do all computer work in half laying state.
When I sit (usually out of house, in company etc) I dont feel problems but when alone i spend my time like on the photo.. but always "active" mentally.
so does this count as being in bed? or people really mean.. doing nothing and being in bed?
another issue is for example with dr Lerners activity levels. I'd fit 7 (able to work sedentary job, light housekeeping and socializing, also i'm able to do light sport (like dancing, skating), but i still need to lay down when on computer instead of sitting).. but i have big delayed sleep disorder, meaning i rarely wake up before noon, so this activity levels dont real take into consideration stuff like sleep disorders that are common in ME. So based on this EIPS, i have no idea where I fit.,..and if laying on the side while doing computer work counts as time in bed..
I'd like to know to track my progress and get a better idea in general where i am..
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