When the 'Holiday Season' Is No Holiday at all for Those With ME/CFS
Is December getting to you? Jody Smith shares some thoughts on some of the struggles that all too often attend this time of year ...
Discuss the article on the Forums.

Active EBV?

Discussion in 'Immunological' started by Anana, Jan 10, 2018.

  1. Anana

    Anana

    Messages:
    36
    Likes:
    71
    Hello!
    I have posted here before but I am mostly lurking in the shadows. I do have a question for you.

    I had mono in 2010 (lasted about one year) which left me with PEM after intense actibvities and in need of a nap or so a week but that's about it. In January 2017, I became bed bound for about 6 months and I am still inable to work or care for my 3 year old more than 3 days a week.

    To get to the point, my EBV results have been as attached simce June 2016 (doctors hadn't told me, I just discovered after getting results printed).
    ***See lab results in comments as I forgot to post.***
    My questions:
    1) Am I having mono a second time? It feels much worse that the 1st time.
    2) Do I have CFS because of EBV?
    3) Would a specialist help? If yes, which one? (Immunologist, infectious disease?)
    4) My family doctor says I don't have mono and refuses to try an antiviral, such as Famvir. Anyone think it would be helpful?

    I can't get another doctor because I live in rural Ontario, Canada and doctors are pretty scarce.

    Thank you all so much for taking the time to read this. I am sending everyone love and courage.
     

    Attached Files:

    Last edited: Jan 10, 2018
  2. Hip

    Hip Senior Member

    Messages:
    9,757
    Likes:
    15,541
    ME/CFS is linked to active infections with certain herpesviruses (namely EBV, HHV-6 and cytomegalovirus) as well as certain enteroviruses (coxsackievirus B and echovirus). If you have an active infection with one or more of these, ME/CFS specialist doctors consider that it could be the cause of your ME/CFS, and will treat with the appropriate antivirals or immunomodulators.

    I find it hard to interpret your EBV results, because normally they would give you a numerical result, whereas your lab report just says "reactive" or "non-reactive". However, the fact that your lab results conclude with "possible recent infection" suggests that you may currently have an active EBV infection.

    Treatment given by ME/CFS specialist doctors for an an active EBV infection includes Valtrex 1,000 mg x 4 daily. This is Dr Lerner's protocol for EBV ME/CFS. It usually takes 3.5 months to begin to see improvements, but the full benefits of this antiviral can take up to 2 years to manifest.

    You can by Valtrex at these prescription-free pharmacies, but unfortunately it is expensive, and may be confiscated by Canadian customs.

    It is immoral that doctors will not prescribe these antivirals, as they do help some ME/CFS patients.



    Other much cheaper options you might consider to improve your ME/CFS are: the methylation protocol, low-dose naltrexone. Some info about them here.
     
  3. Anana

    Anana

    Messages:
    36
    Likes:
    71
    Thank you so much for the reply. I will look into the links you supplied! I know, Canadian lab results are qualitative instead of quantitative, which is very frustrating (amongst other things).
    Thanks again!
     
    PWR (Peace without Rest) and Hip like this.
  4. Patrick*

    Patrick* Formerly PWCalvin

    Messages:
    242
    Likes:
    245
    California
    Anana, I recently went through a long period of trying to determine if I really have active EBV because tests repeatedly showed that I had an active infection. My doctors couldn't agree on whether these test results were significant or errors. You said you've been lurking, so maybe you've already seen this: http://forums.phoenixrising.me/inde...is-right-about-chronic-ebv.56744/#post-942956

    Also, most of the blog posts on my blog throughout all of 2017 deal with this question of what to make of my EBV IgM test results and whether and how to treat EBV. You might find something interesting there: http://quixoticmeblog.blogspot.com/2017/01/i-have-active-ebv-infectionagain.html

    Good luck.
     
    Hip and Anana like this.
  5. Anana

    Anana

    Messages:
    36
    Likes:
    71
    Thank you SO much for your knowledge! It sounds like we're in the exact same boat.
     
    Patrick* likes this.
  6. Learner1

    Learner1 Professional Patient

    Messages:
    1,402
    Likes:
    2,404
    Pacific Northwest
    Sounds like it may be worth treating and see if you feel better. My brain fog and cognitive dysfunction improved dramatically within 4 weeks of Valcyte.
     
    Anana likes this.
  7. Anana

    Anana

    Messages:
    36
    Likes:
    71
    Really? How long have you been on Valcyte now? Was it for chronic EBV? Thank you so much for replying!
     
  8. Learner1

    Learner1 Professional Patient

    Messages:
    1,402
    Likes:
    2,404
    Pacific Northwest
    Yes, I've been on it for 7 months for chronic EBV.
     
  9. Tammy

    Tammy Senior Member

    Messages:
    1,098
    Likes:
    1,445
    New Mexico
    I have been on an anti-viral protocol for EBV for 2 and 1/2 yrs using herbal anti-virals. Although I am not cured...............I no longer feel that horrible 24/7 yucky flu feeling. I had many layer upon layer symptoms............and many of those are gone. I learned more about EBV from Anthony William...............his 1st and 3rd book have the best information I've come across since researching this illness for the past 20 yrs.
     
    Abha and Billt like this.

See more popular forum discussions.

Share This Page