August 8th, 2016: Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis
Jody Smith joins with other ME voices in honor of Understanding and Remembrance Day for Severe Myalgic Encephalomyelitis.
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actions on CDC empirical definition

Discussion in 'Action Alerts and Advocacy' started by Finch, Sep 29, 2009.

  1. jspotila

    jspotila Senior Member

    The Association does not have any samples at this time. In addition to the HHS Working Group, Dr. Vernon has been working to connect researchers interested in replication studies with clinicians/researchers who already have samples (or could provide them quickly). Like I said (somewhere), that information is all confidential.

    I will look for clarification on what the Association has said to the Working Group, whether in the form of a written submission like you suggest or through Dr. Vernon's participation on the conference calls. My understanding is that the first phase replication effort will use patient and control samples from WPI, not CDC. Regardless, we do not support the use of Reeves' empiric definition in selecting patients for these studies.

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