This is not a surprise to me. Is it to anyone else?
I have always wondered how Inaction for ME would cover the PACE trial when lots of articles about it come out and it becomes too big to ignore.
None of the major stories this week (**) about the PACE scandal have been mentioned on Inaction for ME's news thread or its twitter account. they are keeping their members in the dark.
https://www.actionforme.org.uk/news/
https://twitter.com/actionforme
They always have nonsense stories and always asking for money,
Can anyone take a snapshot of these this week for evidence?
This is the ME communities BIGGEST problem. This is the root cause. See also
http://forums.phoenixrising.me/inde...ded-by-action-for-me.44622/page-3#post-726339
http://forums.phoenixrising.me/index.php?threads/afme-and-pace-trial.42801/#post-692577
In fact I think calling them Inaction for ME is being too generous and charitable to even call them that. They are actively working against the interests of the ME community and in conjunction with the psychiatrists.
Nothing will improve for people in the UK until AFME are taken out. That is the hard truth.
** examples
The Conversation US: How a study about Chronic Fatigue Syndrome was doctored
Do graded activity therapies cause harm in chronic fatigue syndrome?
Dr C. Wilshire:The problem of bias in behavioural intervention studies: Lessons from the PACE trial.
Scientists and patient organisations call for retraction of PACE recovery paper - open letter
Investigator bias and the PACE trial by Steve Lubet in Journal of Health Psychology
I have always wondered how Inaction for ME would cover the PACE trial when lots of articles about it come out and it becomes too big to ignore.
None of the major stories this week (**) about the PACE scandal have been mentioned on Inaction for ME's news thread or its twitter account. they are keeping their members in the dark.
https://www.actionforme.org.uk/news/
https://twitter.com/actionforme
They always have nonsense stories and always asking for money,
Can anyone take a snapshot of these this week for evidence?
This is the ME communities BIGGEST problem. This is the root cause. See also
http://forums.phoenixrising.me/inde...ded-by-action-for-me.44622/page-3#post-726339
http://forums.phoenixrising.me/index.php?threads/afme-and-pace-trial.42801/#post-692577
In fact I think calling them Inaction for ME is being too generous and charitable to even call them that. They are actively working against the interests of the ME community and in conjunction with the psychiatrists.
Nothing will improve for people in the UK until AFME are taken out. That is the hard truth.
** examples
The Conversation US: How a study about Chronic Fatigue Syndrome was doctored
Do graded activity therapies cause harm in chronic fatigue syndrome?
Dr C. Wilshire:The problem of bias in behavioural intervention studies: Lessons from the PACE trial.
Scientists and patient organisations call for retraction of PACE recovery paper - open letter
Investigator bias and the PACE trial by Steve Lubet in Journal of Health Psychology