Severe ME Day of Understanding and Remembrance: Aug. 8, 2017
Determined to paper the Internet with articles about ME, Jody Smith brings some additional focus to Severe Myalgic Encephalomyelitis Day of Understanding and Remembrance on Aug. 8, 2017 ...
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Action for ME campaign

Discussion in 'Action Alerts and Advocacy' started by Jenny, Feb 7, 2012.

  1. Jenny

    Jenny Senior Member

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  2. Enid

    Enid Senior Member

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    Hope this is a step forward - they have been sitting on the fence far too long.
     
  3. peggy-sue

    peggy-sue

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    I don't really think so. This is what you get when you click on the link....
    http://www.actionforme.org.uk/get-i...me-for-action/i-agree-its-time-for-action.htm

    Not asking for you to get involved with a "time for change action", just "do you think it's time to have an action?"

    I've replied on the Scottish Hub forum, but I'm rapidly falling out with them. Every time I criticise the Wesseley school, my posts get deleted. Every time I ask why they're still in cahoots with psychiatrists I get a standard pat reply of something along the lines of;
    "but you do get psychological problems with having a long term chronic illness and there are psychological problems that arise as part of the illness"

    When I respond that these are not what the psychiatrists are looking at, my post gets deleted.
     
  4. Min

    Min Guest

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    My posts on their Facebook page pointing out that their collusion with the PACE trial has greatly added to the problems we face are being deleted too - and they are still supporting the appalling SMILE trial of the Lightning Process on children.

    Their CEO still earns over 71, 000 a year (what for?), they still have no AGMs and their only members are the self elected executive - everyone else is merely a subscriber to their magazine with no voting rights.



    They have never sat on the fence, they have always at their top level supported the Wessely school of psychiatry .
     
  5. peggy-sue

    peggy-sue

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    I'm only on the forum to keep an eye on them......;)
     

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