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Action for M.E. - Placing Patient Views at the Heart of a New Research Strategy

Discussion in 'Phoenix Rising Articles' started by Firestormm, Dec 6, 2013.

  1. Bob

    Bob

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    It would have paid for the Rituximab study. :rolleyes:
    Valentijn, Min and peggy-sue like this.
  2. Min

    Min Senior Member

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    Thankyou MeSCI. The details say:

    l wonder which so-called treaments they refer to, as useless GET and CBT are the only treatments offered to myalgic encephalomyelitis sufferers in the UK. Then again, as they will probably use the Oxford criteria that Prof White, I understand helped develop, goodness knows what medical condition will be studied.
    Last edited: Mar 13, 2014
    Valentijn and peggy-sue like this.
  3. Leopardtail

    Leopardtail Senior Member

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    The grant proposal says they should be receiving "specialist treatment" and already be diagnosed hence they should be NHS diagnostic guidelines. To my knowledge they have not been subjected to external validation as per Canadian and Fukuda but PEM is present. What concerns me more is the time period, many ME patients improve over summer thus perverting results. Also this is not 'placebo controlled' since they are comparing with an obvious lack of treatment.
    [above content edited to reflect a correction from Firestorm]
    Last edited: Mar 14, 2014
  4. Firestormm

    Firestormm Senior Member

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    NICE Guideline states:

    MeSci and Simon like this.
  5. Leopardtail

    Leopardtail Senior Member

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    Corrected with thanks.
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