Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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Action alert: Fri 6 March: register on reddit to upvote Dr Mady Hornig to the front page & ask qns

Discussion in 'Action Alerts and Advocacy' started by Sasha, Mar 5, 2015.

  1. Sasha

    Sasha Fine, thank you

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    This is a HUGE opportunity to raise the profile of ME/CFS and to pull in donations for the Lipkin/Hornig microbiome study and raise general awareness of our disease.

    Reddit is a very high-profile news website where the stories that make the front page are the ones that users have voted for.

    People read reddit every day like a newspaper - it has enormous reach. Yesterday, nearly two million people were logged in.

    Our very own Dr Mady Hornig is doing a Q&A on reddit at 1pm US Eastern Time. On reddit, that's called an 'AMA' (Ask Me Anything).

    She's doing that here: http://www.reddit.com/r/science/comments/2y4ph4/science_ama_series_im_professor_mady_hornig_at/

    If a thread gets enough upvotes, it will land on the front page of reddit, and in the "all" section, which will expose the story to millions more readers.

    We can take advantage of this reddit event in two ways. Both require you to register on reddit, which took me 10 seconds just now, and doesn't require your email address.

    The AMA will appear from 8am on Friday morning and you'll be able to start posting questions and voting then.

    (1) When the AMA appears, vote it up! That will get it high up in the news on reddit so that more people will see it.

    The link is now live - please vote now!


    And upvote any good questions!

    (2) Ask a question! If you can work the donation link in, great. It's: http://www.bit.ly/DonateToDrLipkin

    If you struggle to get the hang of reddit (or think you might) and can't figure out how to post a question, post your question on the main PR thread about this event, which is here, and someone will try to post it for you (no guarantees, though!).

    You don't need to watch this but this video has a short explanation of reddit.



    Please continue general discussion of the event on the main thread, here.

    @Kina - I realise that there's already a thread about the reddit even but we need one that's a simple call to action for people. Hope that's OK! :)
     
    Last edited: Mar 6, 2015
    rosie26, beaker, SDSue and 12 others like this.
  2. A.B.

    A.B. Senior Member

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    An important rule for the science subreddit:

    In other words, if you want to criticize some therapies or approaches in one of your questions, be prepared to back your arguments up with links to other sources.
     
    Esther12, Bob and Sasha like this.
  3. A.B.

    A.B. Senior Member

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    Why upvoting the AMA is so important:

    If a thread gets enough upvotes, it will land on the front page of reddit, and in the "best of" section, which will expose the story to millions more readers.
     
    beaker, SpecialK82, Esther12 and 3 others like this.
  4. Valentijn

    Valentijn Senior Member

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    It looks like it probably opens for questions at around 8am EST, and if I understand correctly people can also start voting up questions then. And at 1pm EST, the live answer session starts?
     
    SpecialK82 and Sasha like this.
  5. Sasha

    Sasha Fine, thank you

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    Good point, thank you - I've edited that into my post (and put it in red!).
     
  6. Sasha

    Sasha Fine, thank you

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    Thanks, I've edited that in.
     
    Valentijn likes this.
  7. Soundthealarm21

    Soundthealarm21 Senior Member

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    @Sasha

    Looks pretty good. I'd like to make one correction. A thread doesn't end up in /r/bestof based on upvotes. That is a specific subreddit. The goal is for this thread to make it to the front page of /r/all which is a page people click on to see all subreddits at a given time. http://www.reddit.com/r/all


    The likelihood of this making the front page before she starts answering questions is slim. A lot of AMAs don't end up on the front page until many many hours later, but that is not as much of a concern. If it gets there people will read it.
     
    aimossy likes this.
  8. snowathlete

    snowathlete

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    8am EST is 1pm in the UK.
    1pm EST is 6pm in the UK.
    For other time zone conversions:
    www.timeanddate.com/worldclock/converter.html
     
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  9. Sasha

    Sasha Fine, thank you

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    My link was to get people to the page where the AMA will appear. Is there something special that people need to do to get it on the 'all' front page?

    Sorry, I'm clueless about this! I'm trying to collate what people have posted about reddit into sensible instructions. Can you give me a form of words to cut and paste into my post that instructs people how to achieve what you're saying? Better than me trying to paraphrase you!
     
  10. Soundthealarm21

    Soundthealarm21 Senior Member

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    I'll try to explain as best I can:

    /r/science is a specific subreddit on the site. It's is one of thousands of subreddits. When a post gets a lot of attention (positive upvotes/karma) it'll start moving up the list of posts. There is a subreddit that includes every post from every subreddit and is called /r/all. So the AMA will be in the /r/science subreddit, but if it gets popular enough it'll move higher up on /r/all.

    For example: This is the front page of /r/all right now. The top post is a picture from the subreddit /r/pics. It had achieved enough upvotes to land on the front page.
    Reddit all example 1.jpg



    Reddit all example 2.jpg

    I hope that helped explain it. Feel free to ask more questions if you need help!
     
    Bob and Sasha like this.
  11. Sasha

    Sasha Fine, thank you

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    Thanks, @Soundthealarm21!

    But have I said something wrong in my first post?

    I've said:

    I want to give people as little to read as possible, and instructions that are as simple as possible. If all they need to do is click on the thread to upvote it, and that will lead it to going up all these lists, I'd rather leave the instructions like that.
     
  12. Soundthealarm21

    Soundthealarm21 Senior Member

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    Simply change the words "bestof" with "/r/all" lol. That's it.
     
    Sasha likes this.
  13. Sasha

    Sasha Fine, thank you

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    I've put:

    If a thread gets enough upvotes, it will land on the front page of reddit, and in the "all" section, which will expose the story to millions more readers.​

    Hope that's OK - I don't want to dazzle people with strange character-strings!
     
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  14. Soundthealarm21

    Soundthealarm21 Senior Member

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    @Sasha

    Yes that's perfectly fine. All people need to do is upvote and ask questions and the rest will take care of itself!
     
    beaker, oceiv, SB_1108 and 1 other person like this.
  15. oceiv

    oceiv Senior Member

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    Thanks for this action thread and to @DanME and everyone who provided Reddit basics. 3 questions about Reddit:

    1) I've been poking around the Science subreddit. It looks to me like upvoting the Hornig AMA will also help move it up the page within the science subreddit. The most upvoted thread within the science subreddit is at the top of the page, now. So, is it true that upvoting the thread can both help move it up the page within the science subreddit and help move it to the frontpage?

    2) Will the Hornig AMA appear within a short window around 8 am (say 8-8:30) or can it appear anywhere up to 11 am? @Valentijn said it looks like it will open at 8. Can I see that info on the science subreddit now?

    3) Who posts the AMA thread (Hornig? A science moderator?)

    I've convinced someone to attend. As encouragement for others, she's describes herself as not very technical and thought it was super-easy to sign up for the site.
     
    Sasha likes this.
  16. Soundthealarm21

    Soundthealarm21 Senior Member

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    1. There is a "front page" of the whole website (www.reddit.com/r/all) and a front page of each individual subreddit (in this case www.reddit.com/r/science). Upvotes will move it up each page.

    2. The thread will appear at 8am, but the questions will not be answered until Hornig shows up which is said to be 1pm ET. That information appears in the sidebar on the front page of /r/science under the AMA section.

    3. My guess is that a moderator of /r/science will create an account for Hornig and set up the thread, and Hornig will later use that account to answer questions.
     
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  17. oceiv

    oceiv Senior Member

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    @Soundthealarm21 Thanks. :thumbsup: I can now tell the person attending exactly what to expect.
     
    Soundthealarm21 likes this.
  18. SpecialK82

    SpecialK82 Ohio, USA

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    Thanks for the information everyone, I just became a reddit user so I'm good to go. Am trying to get a bit comfortable with the format for tomorrow. Will be asking a question, but can't get on until a couple hours into the process. I'm going to ask if they will be able to re-submit their funding request to the NIH under SEID criteria.
     
    Sasha, Valentijn, SB_1108 and 3 others like this.
  19. Soundthealarm21

    Soundthealarm21 Senior Member

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    Can someone link me to the research they've done so that I can formulate a good question or two?
     
    oceiv likes this.
  20. oceiv

    oceiv Senior Member

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    NK17, Sasha and Soundthealarm21 like this.

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