1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
Ergonomics and ME/CFS: Have You Hurt Yourself Without Knowing It?
Having a chronic illness like ME/CFS can make it hard to avoid problems that come from bad ergonomics. Jody Smith has learned some lessons the hard way ...
Discuss the article on the Forums.

aches, pain in teeth and jaw bone

Discussion in 'Pain and Inflammation' started by rosie26, Jun 21, 2013.

  1. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    In the years leading up to my ME, I was getting a lot of mild symptoms of ME but didn't realize it then.

    One of them was ache, pain and a sore twinge in the jaw bone. I used to think it was severe toothache and would take myself off to the dentist and plead with him to pull them out. I remember him saying to me " I can't see anything wrong with those teeth" but I was determined to get them out, there was just to much aching and they were making me edgy.

    I eventually fell severely ill with ME in 2001 and by 2007 had all my teeth pulled out and now have false teeth.

    What I realize now was that my dentist I think was right, there was nothing wrong with those teeth. The reason I say that is because I still get the ache, pain and twinge in my jaw bone where my teeth once were !

    So anyone experiencing this might find it isn't your teeth that is the problem.

    I have had xrays done in the last 6 years and didn't show up any problem in the jaw bone ?
    Jarod likes this.
  2. SOC

    SOC Moderator and Senior Member

    Messages:
    5,293
    Likes:
    6,280
    USA
    I was told my tooth and jaw aching was from swelling in salivary glands and/or lymph nodes. That was probably true since the only time I have it now that I've cleared chronic infections is when I have a cold or similar infection.
    MeSci and rosie26 like this.
  3. Marg

    Marg Senior Member

    Messages:
    343
    Likes:
    53
    Wetumpka Alabama
    rosie26 likes this.
  4. Marg

    Marg Senior Member

    Messages:
    343
    Likes:
    53
    Wetumpka Alabama
    My teeth always ache before a change in the weather. I do a better job than the weather people.
    rosie26 likes this.
  5. Enid

    Enid Senior Member

    Messages:
    3,309
    Likes:
    840
    UK
    Having experienced the same for quite a long spell I'd suggest some unidentified infection - following extraction of two teeth and put on a course of high dose amoxicillin the problem did ease with a bonus of doing wonders for the GI tract. "Repopulated" with masses of Probiotics afterwards.
    rosie26 likes this.
  6. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    You got me laughing Marg

    The salivary glands I do suspect a lot as mine get swollen under the tongue and are quite tender and sore at times, I just never connected that symptom to the ache and pain in the jaw - thanks SOC

    Possible some infection somewhere Enid but have been on antibiotics for other reasons and still get these symptoms off and on.
  7. MeSci

    MeSci ME/CFS since 1995; activity level 6

    Messages:
    3,512
    Likes:
    4,122
    Cornwall, UK
    I agree with the lymphatic/gland connection. I get tooth pain at times, and the fact that it comes and goes suggests to me that it is not actually due to there being something wrong with the teeth themselves.

    A few years ago I was suffering not just tooth pain but also tooth damage, with fillings falling out and even a chunk of tooth coming off. At the same time I suffered a wrist fracture from a minor fall. I have never broken a bone before or since.

    After doing a lot of reading of scientific papers and making connections, I concluded that that particular problem was mineral deficiency. Since then I have been supplementing with bone minerals, and the damage and associated pain appears to have ceased, apart from occasionally when I have overexerted myself, i.e. it comes as part of PEM. The supplementation has also improved other symptoms, such as insomnia.

    So even though you no longer have teeth to protect, it may be advisable to take mineral supplements, and also make sure that your Vitamin D levels are adequate. My bone mineral supplement contains Vitamin D as well.

    Lately I have been getting tooth pain in a particular area, and have been using grapefruit seed extract as a mouthwash in case it is a recurrent infection. I don't know if it is just a coincidence, but I have also been getting cold-sore-like spots coming and going near the affected teeth.

    Maybe my diet-and-supplement regime is starting to turn down my immune activity, and my immune system is having to relearn what to attack and what to tolerate.

    Or maybe that is just wishful thinking!
    rosie26 likes this.
  8. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    MeSci

    I have just been re-reading your last post here. You brought up a few things that I was meant to respond to at the time but obviously didn't.

    I did get quite a few teeth pulled out because I thought the aching was coming from them, but I did also have the same problem as you, with chips of teeth breaking off. When it starting happening to my two front teeth I was really peeved, as I would get them fixed and then 9 months to a year later off they would come again and it was back to the dentist again. I got sick of this and decided to just get them all out.

    I think you are right about taking the minerals to keep the bones strong. I am going to start back on the minerals again. And am thinking of adding Vit D just during the winter months. x
  9. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,220
    Likes:
    4,524
    australia (brisbane)
    Sinusitis can cause teeth to ache.
  10. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    heapsreal

    yes probably plays a part to the top teeth heapsreal, I find the sinusitis not only makes the sinuses ache but also makes the facial bones ache. But also there is that lymphatic and neurological stuff going on as well which all adds to the mix and can cause ache and pain in the whole area as well. x
    heapsreal likes this.
  11. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,220
    Likes:
    4,524
    australia (brisbane)
    The teeth wearing down and thinning a coomon thing for cfsers??
    My teeth are badly worn down and to get a tooth capped in australia was $1000 a tooth when i enquired 10yrs ago and if one gets private health insurance here if covers 2 teeth a year and only 55% of the cost, getting the insurance costs more??
    rosie26 likes this.
  12. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    That's why I got mine out. It was costing me a fortune. I live across the ditch from you and it's crazy expensive here as well. Some people take holidays in I think it was malaysia I heard ? and while there get there dental treatment done, so cheap there. I don't really have too many problems with the false teeth, it is so good not to have problem teeth anymore.
  13. heapsreal

    heapsreal iherb 10% discount code OPA989,

    Messages:
    7,220
    Likes:
    4,524
    australia (brisbane)
    Hey bru,
    yes people go over to thailand etc for medical holidays etc I have heard some good stories and bad ones, its something that has to be researched.
    I told the dentist 10 yrs ago to basically go and jump as it was going to cost me thousands to get my teeth done as he said it was pointless getting 1 tooth done at a time as it would wear unevenly etc. I told him to basically bugger off i will let them fall out and i will get falseys. He said u cant do that, to which i replied, your not giving me any choice pal.
    Thailand is a possible option as its with in striking range money wise, i just dont wont to wake up with a set of boobs lol. abit of lipo wouldnt go astray, actually alot of lipo :rofl:
    rosie26 likes this.
  14. rosie26

    rosie26 Senior Member

    Messages:
    1,022
    Likes:
    1,278
    NZ
    lol
    yeah you better do your homework before you go. boobs would no good ha ha what a shock to wake up to that. oh you really got me laughing. Yes I have heard the horror stories too. Perhaps you can tell him you don't mind a bit of lipo while he's at it ha ha They probably know how to do it as well.
    heapsreal likes this.

See more popular forum discussions.

Share This Page