aches, pain in teeth and jaw bone

[rosie26]

In the years leading up to my ME, I was getting a lot of mild symptoms of ME but didn't realize it then.

One of them was ache, pain and a sore twinge in the jaw bone. I used to think it was severe toothache and would take myself off to the dentist and plead with him to pull them out. I remember him saying to me " I can't see anything wrong with those teeth" but I was determined to get them out, there was just to much aching and they were making me edgy.

I eventually fell severely ill with ME in 2001 and by 2007 had all my teeth pulled out and now have false teeth.

What I realize now was that my dentist I think was right, there was nothing wrong with those teeth. The reason I say that is because I still get the ache, pain and twinge in my jaw bone where my teeth once were !

So anyone experiencing this might find it isn't your teeth that is the problem.

I have had xrays done in the last 6 years and didn't show up any problem in the jaw bone ?

 

[SOC]

I was told my tooth and jaw aching was from swelling in salivary glands and/or lymph nodes. That was probably true since the only time I have it now that I've cleared chronic infections is when I have a cold or similar infection.

 

[Marg]

I was told my tooth and jaw aching was from swelling in salivary glands and/or lymph nodes. That was probably true since the only time I have it now that I've cleared chronic infections is when I have a cold or similar infection.

 

[Marg]

My teeth always ache before a change in the weather. I do a better job than the weather people.

 

[Enid]

Having experienced the same for quite a long spell I'd suggest some unidentified infection - following extraction of two teeth and put on a course of high dose amoxicillin the problem did ease with a bonus of doing wonders for the GI tract. "Repopulated" with masses of Probiotics afterwards.

 

[rosie26]

You got me laughing Marg

The salivary glands I do suspect a lot as mine get swollen under the tongue and are quite tender and sore at times, I just never connected that symptom to the ache and pain in the jaw - thanks SOC

Possible some infection somewhere Enid but have been on antibiotics for other reasons and still get these symptoms off and on.

 

[MeSci]

You got me laughing Marg

The salivary glands I do suspect a lot as mine get swollen under the tongue and are quite tender and sore at times, I just never connected that symptom to the ache and pain in the jaw - thanks SOC

Possible some infection somewhere Enid but have been on antibiotics for other reasons and still get these symptoms off and on.

I agree with the lymphatic/gland connection. I get tooth pain at times, and the fact that it comes and goes suggests to me that it is not actually due to there being something wrong with the teeth themselves.

A few years ago I was suffering not just tooth pain but also tooth damage, with fillings falling out and even a chunk of tooth coming off. At the same time I suffered a wrist fracture from a minor fall. I have never broken a bone before or since.

After doing a lot of reading of scientific papers and making connections, I concluded that that particular problem was mineral deficiency. Since then I have been supplementing with bone minerals, and the damage and associated pain appears to have ceased, apart from occasionally when I have overexerted myself, i.e. it comes as part of PEM. The supplementation has also improved other symptoms, such as insomnia.

So even though you no longer have teeth to protect, it may be advisable to take mineral supplements, and also make sure that your Vitamin D levels are adequate. My bone mineral supplement contains Vitamin D as well.

Lately I have been getting tooth pain in a particular area, and have been using grapefruit seed extract as a mouthwash in case it is a recurrent infection. I don't know if it is just a coincidence, but I have also been getting cold-sore-like spots coming and going near the affected teeth.

Maybe my diet-and-supplement regime is starting to turn down my immune activity, and my immune system is having to relearn what to attack and what to tolerate.

Or maybe that is just wishful thinking!

 

[rosie26]

MeSci

I have just been re-reading your last post here. You brought up a few things that I was meant to respond to at the time but obviously didn't.

I did get quite a few teeth pulled out because I thought the aching was coming from them, but I did also have the same problem as you, with chips of teeth breaking off. When it starting happening to my two front teeth I was really peeved, as I would get them fixed and then 9 months to a year later off they would come again and it was back to the dentist again. I got sick of this and decided to just get them all out.

I think you are right about taking the minerals to keep the bones strong. I am going to start back on the minerals again. And am thinking of adding Vit D just during the winter months. x

 

[heapsreal]

Sinusitis can cause teeth to ache.

 

[rosie26]

heapsreal

yes probably plays a part to the top teeth heapsreal, I find the sinusitis not only makes the sinuses ache but also makes the facial bones ache. But also there is that lymphatic and neurological stuff going on as well which all adds to the mix and can cause ache and pain in the whole area as well. x

 

[heapsreal]

The teeth wearing down and thinning a coomon thing for cfsers??
My teeth are badly worn down and to get a tooth capped in australia was $1000 a tooth when i enquired 10yrs ago and if one gets private health insurance here if covers 2 teeth a year and only 55% of the cost, getting the insurance costs more??

 

[rosie26]

That's why I got mine out. It was costing me a fortune. I live across the ditch from you and it's crazy expensive here as well. Some people take holidays in I think it was malaysia I heard ? and while there get there dental treatment done, so cheap there. I don't really have too many problems with the false teeth, it is so good not to have problem teeth anymore.

 

[heapsreal]

That's why I got mine out. It was costing me a fortune. I live across the ditch from you and it's crazy expensive here as well. Some people take holidays in I think it was malaysia I heard ? and while there get there dental treatment done, so cheap there. I don't really have too many problems with the false teeth, it is so good not to have problem teeth anymore.

Hey bru,
yes people go over to thailand etc for medical holidays etc I have heard some good stories and bad ones, its something that has to be researched.
I told the dentist 10 yrs ago to basically go and jump as it was going to cost me thousands to get my teeth done as he said it was pointless getting 1 tooth done at a time as it would wear unevenly etc. I told him to basically bugger off i will let them fall out and i will get falseys. He said u cant do that, to which i replied, your not giving me any choice pal.
Thailand is a possible option as its with in striking range money wise, i just dont wont to wake up with a set of boobs lol. abit of lipo wouldnt go astray, actually alot of lipo

 

[rosie26]

lol
yeah you better do your homework before you go. boobs would no good ha ha what a shock to wake up to that. oh you really got me laughing. Yes I have heard the horror stories too. Perhaps you can tell him you don't mind a bit of lipo while he's at it ha ha They probably know how to do it as well.

 

[fireflymd]

In the years leading up to my ME, I was getting a lot of mild symptoms of ME but didn't realize it then.

One of them was ache, pain and a sore twinge in the jaw bone. I used to think it was severe toothache and would take myself off to the dentist and plead with him to pull them out. I remember him saying to me " I can't see anything wrong with those teeth" but I was determined to get them out, there was just to much aching and they were making me edgy.

I eventually fell severely ill with ME in 2001 and by 2007 had all my teeth pulled out and now have false teeth.

What I realize now was that my dentist I think was right, there was nothing wrong with those teeth. The reason I say that is because I still get the ache, pain and twinge in my jaw bone where my teeth once were !

So anyone experiencing this might find it isn't your teeth that is the problem.

I have had xrays done in the last 6 years and didn't show up any problem in the jaw bone ?

I have had this for almost 14 years, in the bone of my jaw beneath a root canal (that was done on a healthy tooth in error).

I finally had that root canal extracted and an implant put in, but over time the aching, pulling sensation in the bone recurred.

No dentist or oral surgeon could find any problem, until I saw a specialist dentist who told me this was likely due to Lyme!

He said the Borrelia spirochete has a predilection for these nerves and was irritating the nerve that innervates the region of either the maxilla (where the upper teeth are situated) or the mandible (jaw bone) and that this is why the pain sensation is not constant—he said it is intermittent because the spirochete is irritating the nerve intermittently.

He said if it was a typical bacterial infection in the actual tooth or bone that the pain would be constant.

I thought this was a fascinating explanation for this unexplained pain that I’ve had on and off for years—and it coincided with the onset of my fatigue. (Which I thought was due to the root canal.)

I still have intermittent pain despite treating for Lyme but another Lyme patient (who had a positive Plasmid PCR for Borrelia through IGeneX) has noted resolution of this symptom with treatment.

It’s a fascinating possibility.

 

[rosie26]

@fireflymd I had a lot of teeth pulled out before getting the lot out. Some of the teeth pulled were fine in hindsight but in all, my teeth were giving me big problems. Repairs were needing repairing far too soon. One lady dentist (in my early mild ME years) asked me if I had a health problem because she thought my teeth were deteriorating from the inside, not the outside. I remember feeling disquieted at the time because I knew something was wrong with my health overall but I couldn't understand the early symptoms of ME.

I still the aching twinge in the lower left jaw bone. It's always been a sign that my ME is deteriorating. I have a couple of other places on my body where I get the aching twinge as well and always in the same spot.

I don't think I have Lyme but I did have another bacterial infection which I believe started the whole process into ME.

My ME timeline which began over 30 years ago, in my view, began with a bacterial infection Chlamydia trac. which changed the microbiome permanently. Then 10 years later a flu triggered mild ME onset then 6 years later a very nasty flu triggered severe ME.

He said if it was a typical bacterial infection in the actual tooth or bone that the pain would be constant.

That's right. I would think so too. I once had an abscess around one of my lower wisdom teeth and the pain became horrendous, right up the side of my face.

I think we are post infectious and left with major dsyregulation.

 

[rosie26]

He said the Borrelia spirochete has a predilection for these nerves and was irritating the nerve that innervates the region of either the maxilla (where the upper teeth are situated) or the mandible (jaw bone) and that this is why the pain sensation is not constant—he said it is intermittent because the spirochete is irritating the nerve intermittently.

@fireflymd I missed replying to this. I think it might be the nerve too.

I was just trying to remember while writing above what it felt like when the dentist drilled over a tooth nerve (not hard to remember) and the twinge I get in the jaw bone does feel like that nerve pain at a lower level.

 

[perchance dreamer]

The teeth wearing down and thinning a coomon thing for cfsers??
My teeth are badly worn down and to get a tooth capped in australi

@heapsreal, do you wear a nightguard when you sleep? I think it's vital if you have thinning teeth and wear. It's best to get a dentist to fit you with a custom nightguard although they are available from places like Amazon.

Slowly over time, my teeth aren't as thin after long use of Thorne vitamin K-2, MK4 type. I take it mainly for the bone health effects.

 

[Strawberry]

No dentist or oral surgeon could find any problem, until I saw a specialist dentist who told me this was likely due to Lyme!

Interesting as I have this going on right now, but I have bartonella, not Lyme? It always starts in my right tonsil, then goes into my face, cheek bones, muscles, ear, and eye socket always on the right side only. My Dr says it isn't a sinus infection as my sinuses aren't congested so won't treat anything, and it isn't dental. I can barely eat as my teeth hurt so bad.

grumble grumble

 

[heapsreal]

@heapsreal, do you wear a nightguard when you sleep? I think it's vital if you have thinning teeth and wear. It's best to get a dentist to fit you with a custom nightguard although they are available from places like Amazon.

Slowly over time, my teeth aren't as thin after long use of Thorne vitamin K-2, MK4 type. I take it mainly for the bone health effects.

I tried a dental fitted mouth guard, protected my toes more than my teeth as thats where id find it after a nights sleep when it would fall out.

The last month ive been using k2 mk4. So you think it helps build teeth back some??