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Acclaimed County Durham Doctor [Chandy] Banned from prescribing vitamins [B12] mustn't treat CFS now

Discussion in 'General ME/CFS News' started by WillowJ, Jul 9, 2014.

  1. user9876

    user9876 Senior Member

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    Yes but it is important for people to note that other diagnostics can initially be done and I think they could argue about them being done when symptoms change to check there is no other underlying condition (including b12 deficiency). I'm assuming that the tests they mention would indicate the possibility of a deficiency but really have no idea.

    I know doctors like to hide behind guidelines rather than explain there in action so I think tells them they should still be using there clinical judgement. I think the real problem in the UK is that too many GPs don't have any clinical judgement.
     
    MeSci likes this.
  2. alex3619

    alex3619 Senior Member

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    Logan, Queensland, Australia
    There are many chronically fatiguing conditions that are not tested for routinely. One is haemochromatosis, which I already referred to, which usually goes undetected. I would want to know that haemochromatosis testing is mandatory before ferritin testing is ruled out in CFS or ME diagnoses. Presentation of symptoms can be delayed till much later in life, indeed usually show up in a patient's fifties or later. If someone has a CFS diagnosis then suddenly they are immune?
     
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  3. Sidereal

    Sidereal Senior Member

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    This is insane. You can actually be dying of a B12 deficiency with a normal MCV.

    Edited to add: A friend of mine almost died from B12 deficiency because of the NHS. She had biopsy-confirmed coeliac disease. Pernicious anaemia is a common comorbidity which every GP should know. She had basically every symptom of B12 deficiency in the book but because her MCV was normal she was diagnosed with "CFS" which in the UK means NO MORE INVESTIGATIONS FOR YOU EVER AGAIN since that would feed your "false illness beliefs".

    Needless to say, her condition continued to deteriorate to the point where she developed neurological signs (subacute combined degeneration of the spinal cord) and could barely walk. The GP was still insisting nothing was wrong, "your blood tests are normal". A private GP saved her life with B12 shots.
     
    Last edited: Jul 10, 2014
  4. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Because everyone know that the most important attribute to look for when choosing a dr. is that he be well liked. :rolleyes: :vomit: :bang-head:
     
  5. mermaid

    mermaid Senior Member

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    The other problem, as I understand it, is that the ranges for B12 testing are set too low.

    So you can be tested and your Dr will say your results are fine, but in fact at the levels they are set at you can have neurological damage.

    Also with any range, if you are just above range then that is not optimal, but your GP will still say it's OK.
     
    Sidereal likes this.
  6. Firestormm

    Firestormm Guest

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    It is also under 'neurological' but I noticed that too last week when they launched their new glossy website. I believe a complaint has been made. Thanks for reminding me. I will try and chase...

    NICE.jpg

    http://www.nice.org.uk/GuidanceMenu/Conditions-and-diseases/Neurological-conditions
     
  7. chipmunk1

    chipmunk1 Senior Member

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  8. Doogle

    Doogle Senior Member

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    I'm not advocating using the ME/CFS Wikipedia article as a treatment guide, but sometimes it can be useful for basic research on studies and reviews. For example, at the main article on ME/CFS, the Treatment section has a sub article named Chronic fatigue syndrome treatment. Under that article there is a small section summarizing the Vitamin B12 studies with a reference to the source.


     
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  9. Antares in NYC

    Antares in NYC Senior Member

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    Boom! Word!

    Also, the use of B12 injections would be another piece of evidence that this illness is PHYSIOLOGICAL at its core. We can't have dangerous ideas like that spreading around. It would cost money to treat them!
     
  10. liverock

    liverock Senior Member

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