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About a month ago I was diagnosed with Serotonin Syndrome...

Discussion in 'General Treatment' started by nostalgic, Aug 19, 2017.

  1. nostalgic

    nostalgic

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    albeit a mild case. I still can't eat any food with more than a little tryptophan in it or the symptoms get worse. The symptoms improved once I quit the medications and started eating rice, butter and vegetables, and when I had just a bit of millet earlier today I got worse almost immediately. I'm well aware that CFS sufferers have extremely long recoveries from things such as surgeries etc; do you think it can be the case for my serotonin syndrome as well? For about a week I've been taking 10-20mg of BCAA to help combat the excess serotonin with decent success, but only if I take the powder at most a few hours before eating.

    I really hope this thing will pass one day, there's only been 1 case ever of chronic SS from what I've read on the internet so most probably mine will pass. It just makes me feel so depressed and I have decided to buy some serotonin antagonists to help with this nightmare (unable to get them here in Sweden). Any thoughts? Thanks for reading.
     
  2. adreno

    adreno PR activist

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    Tianeptine could be interesting, perhaps?
     
  3. nostalgic

    nostalgic

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    Ordered periactin which should be the best according to what I've read.
     
    zzz likes this.
  4. nostalgic

    nostalgic

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    Anyone have any idea if it's possible to have this slow of a recovery due to CFS or if something's wrong? My doctor doesn't seem to take it seriously.
     
  5. nostalgic

    nostalgic

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    An update if anyone's interested:

    Been getting increasingly susceptible to anything that raises serotonin, and now I've also developed a severe histamine intolerance, which hopefully is due to the different meds I've tested. Now I'm able to only eat overcooked potatoes and rice, and only 600 kcal each day. Hopefully my body starts to heal soon or I'll be gone not before too long.
     
    ScottTriGuy likes this.
  6. ukxmrv

    ukxmrv Senior Member

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    Really sorry to hear how you are suffering. I read back on some of your other posts and see this was Lexapro

    Hope other have some ideas on what else you can do. This is serious
     
    nostalgic likes this.
  7. Little Bluestem

    Little Bluestem All Good Things Must Come to an End

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    Have you seen your doctor recently? If s/he is still not taking it seriously, maybe you need another doctor.
     
    TigerLilea likes this.
  8. bertiedog

    bertiedog Senior Member

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    My understanding is that various enzymes clear serotonin from our brains but if these enzymes don't function properly then serotonin can build up.

    The ones I have seen so far are certain COMT enzymes and MAOA. If these are running slow then this stops us getting rid of various neurotransmitters including serotonin. Of course there are others involved in this during the methylation process.

    Some suggest having less tryptophan because it converts to serotonin and one suggestion that I came across was that eating protein plus carbs of certain foods will lower tryptophan levels.

    I think I have this problem because I do have some of these SNPs and I also benefit from Triptans which block serotonin.

    Pam
     
    ScottTriGuy likes this.
  9. Gondwanaland

    Gondwanaland Senior Member

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    An easy selfhack to lower serotonin is to eat a grated raw carrot with coconut oil (Ray Peat's recipe). I don't know what the precise mechanism is, but 2 Tbsps of it caused a severe depression in my husband.
     

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