1. Patients launch $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
A Little Poisoning Along the Road to ME/CFS
Looking at my symptoms, many of which are far less these days and some are gone, it would be easy to figure that I'd just been dealing with some heavy-duty menopausal issues.
Discuss the article on the Forums.

ABCNews.com piece on CFS and XMRV

Discussion in 'General ME/CFS News' started by Rrrr, Oct 30, 2009.

  1. Rrrr

    Rrrr Senior Member

    Messages:
    1,402
    Likes:
    271
  2. jackie

    jackie Senior Member

    Messages:
    591
    Likes:
    5
    Rrrr! Thanks so much for giving us a Heads-up re: this piece. I know there was a place to contact the editor "if you have info on this Topic"....but I don't have the where-with-all to fight today!

    Of course, some of the info was correct....but I personally objected to the spin put on it.

    Although it IS good to be told I'm a FAKER no longer!!! Reporting like this amazes me.

    But the only conclusion I can come to is that the REAL story isn't available in enough places/sources for the average writer to access?

    Most people today still know so little about CFS. If Reeves comments are what's out there (his derogatory and sceptical views) - then that is what will be reported.

    Unless this was written with inflammatory motives - and I'm too naive to recognize that? I've become so sensitive and distrustful, I honestly can't tell any longer!

    "We" need a good writer to introduce some of the findings that are being discussed at the CFSAC meeting....to counter the ignorant statements in the media. And then overwhelm those media outlets with the right "spin"!

    Thank God, we have Hilary Johnson speaking the truth. We simply need her truth in more places!

    thanks again....I've been trying each day to search for articles (especially re: XMRV) but I missed this one... and it's actually the second in a week I've taken exception to!

    jackie (am I being a CURMUDGEON?):p:(
     
  3. sarahg

    sarahg Admin Assistant

    Messages:
    261
    Likes:
    3
    Pennsylvania
    Abc article "is your bitterness a medical condition?"

    Well it's a big step up from just a short time ago

    http://abcnews.go.com/Health/ColdandFluNews/Story?id=7688631&page=8

    Please be sure to click through the other pages to see what other conditions "CFS" is lumped in with in this article. It actually made me so mad that I somehow talked PANDORA into responding to it, and they did!

    Here is the story of PANDORA's response

    http://cfsknowledgecenter.ning.com/profiles/blogs/chronic-fatigue-syndrome-are


    I'm not sure if it is because of XMRV or PANDORA or both that they decided to be at least a little bit less idiotic... and of course in the new article itself it would have nice to see an apology and a retraction for their earlier articles, an apology for reporting false information and needlessly making fun of very physically ill people, as well as not conducting accurate research in writing the "bitterness" article. I'd say overall we still deserve that apology.
     
  4. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    55
    Sarah, I'm so glad I did not see this before now.

    I find it distressing that it's still there. I wonder if there's a way to get them to take it down. It's pretty egregious, even for the bad old days.
     
  5. Koan

    Koan Be the change.

    Messages:
    2,598
    Likes:
    55
    Rrrr & Jackie,

    "Chronic Fatigue Patients: No Longer Fakes?"

    :mad:

    "Fakes"

    :mad:

    "?"

    :mad:

    Many outlets have a person who just writes titles. The title is often written to be catchy. This one is just crappy.

    :cool:
     
  6. Rrrr

    Rrrr Senior Member

    Messages:
    1,402
    Likes:
    271
    ABCNews.com

    yes, there was a lot wrong with that article, starting with the title!
     

See more popular forum discussions.

Share This Page