actually i made a mistake,
4) Anti B-2 adrenergic: 18.3 (top of range 14.0)
it's 37.3 , not 18.3
@pibee what are your symptoms like?
Hm.. long list. Now that I'm destroyed after many abx, it has changed, but since I'm sick for very long, 12 years of considerable CFS (since i was 18) and before that since puberty, maybe more objective to describe how I am last 10 years, so: (currently i'm worse)
onset - gradual (but there was one
'breaking point' when i was 18, i had "nervous" (who would have thought this is literal !) breakdown, after death of father + vaccine while having a flu . then my face got numb, i got big psychiatric symptoms. I didnt notice big change in fatigue because i was always pacing and spending much time sitting, but i noticed shift from high school to university where i couldnt anymore go each day, i'd always try to skip at least 1 or 2 days a week. But in high school i did this too, was never good energy. It also overlaps with Hashimoto i had, that was untreated, but seems to me based on current symptoms
it was CFS from 12 yrs old.
I'd say
i'm at about 50% for CFS, I studied full time, worked (next to study, only from home), had social life, but ALL time at home I spend half laying (maybe not fatigue but OI ?). So
it takes 90% of my energy to get up and go, once I'm out, I dont feel so much fatigue. But honestly for 10 years I pace with only half day out of house so.. its my limit. and usually 1-2 days I dont go anywhere except to nearby store, 500 meters.
walking tires me the most, dancing not at all. it is all very weird, i never understood it, but walking is my worst nightmare since i was 12 or so, my worst part of day was when i had to walk to the tram station 800 meters
My brain fog is big. But i'm pretty much nonstop on computer, reading or chatting. i'm just not much productive because executive functions problems.
It is a
mix of symptoms of CFS, and 'PANS' or neuropsychiatric Lyme. I had apraxia (psychomotor problem), non-24 sleep disorder...
but seems CFS is still dominant in my disability because laying a lot , brain fog, and unable to work full time.
It is weird that
i'm either bed bound (home) but still leave house each day and can go to concerts, parties without any fatigue (tomorrow i feel a bit better) but again spend at least 5 hours in bed... so might be more linked to ANS activation, i didnt do any studies ot check at which pulse I feel the best.
I
cant do any house chores, minimal, very minimal, again this is probably because OI, at lowere pulse than I have when i go out (?), and because of psychomotor problems - apraxia...
I probably didnt help much with answer.