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A Tribute To Rich Van Konynenburg

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Sep 26, 2012.

  1. taniaaust1

    taniaaust1

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    Im feeling this news deep. Rich was a friend to us all, I dont think there could be any nicer person. The time he spent helping us while asking nothing in return. He truely was one of the good guys ... and someone who had so much wisdom. His passing is a huge loss to all.

    Condolences to his wife and family. We wont be forgetting Rich.
     
    Sing likes this.
  2. taniaaust1

    taniaaust1

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    Cort and others.

    We've been talking about Rich's passing in the chat.. so many of us are very sad about it.

    Wondering if we can dedicate the day of his passing each year as a special memorial day named after him.... to remember all those researchers who have put their hearts and time into trying to find a cure for us. I'd really like to see him and others who also devoted so much time to ME/CFS remembered in this way.
     
    roxie60, Sing, Dreambirdie and 4 others like this.
  3. Django

    Django

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    We first came into contact with Dr Rich a year ago when we were living in Thailand, our desperate escape from America to try to find an inexpensive place to live as we dealt with MCS. Thanks to his protocol and his wise words of advice and sage analysis we started to get better...and better.

    4 months ago we were well enough to take another big leap and move back to the States. So far it's worked well and our health has improved again.

    We wouldn't be here without Dr Rich.

    Just another two people who owe their life and quality of life to Dr Rich,
    Django & Dorothy
     
    Sing and taniaaust1 like this.
  4. Django

    Django

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    We first came into contact with Dr Rich a year ago when we were living in Thailand, our desperate escape from America to try to find an inexpensive place to live as we dealt with MCS. Thanks to his protocol and his wise words of advice and sage analysis we started to get better...and better.

    4 months ago we were well enough to take another big leap and move back to the States. So far it's worked well and our health has improved again.

    We wouldn't be here without Dr Rich.

    Just another two people who owe their life and quality of life to Dr Rich,
    Django & Dorothy
     
    Nielk likes this.
  5. Django

    Django

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    By the way, I think what made Rich so rare is that he was very smart, but he was also very humble and honest about what he didn't know. That allowed him to take in new information and synthesize new treatment approaches. I can think of two pretty big names in this area of research and treatment who became very stubborn, even in the face of more evidence, or they became "gurus" and seemed to become more money-focused as they set up their empire - neither describes Dr Rich who was the anti-thesis of that.

    That's why I think one of the best things we could do is endow a scholarship in his name. One that is designed to support a young medical researcher who has a similar mix of humility, intelligence and caring that Dr Rich has.

    Also, we need to continue the research that he started, we need to find other young, talented people who might be interested in entering this field of research and we need to support them as a community if we're to have any hope of finding better treatments for these terrible diseases. Maybe we can combine these two into one scholarship. I'm not sure where would be the best place to do it...but it could make a real difference and seems like a very appropriate way to honor Dr Rich's life.

    Django
     
  6. ellenelle

    ellenelle

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    I was amazed and deeply touched by Rich's tireless dedication to our community.
    His life will continue to inspire me to try to emulate his kindness and generosity.

    Ellen
     
  7. Jimk

    Jimk

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    My deep condolences to Rich's family and loved ones. When I first read the title on my feed reader I thought that there was some well earned award he was being given. It didn't register until I read further that "tribute" was referring to his death. Even now I have trouble accepting that he is no longer here.
    I've been around the ME/CFS community for a very long time and I have never seen anyone who has been as consistently helpful to others, even tempered in his own arguments and in listening to the arguments of others, and as devoted to following a rationally based path to solve some of our puzzle. How he kept track of all the questions, lists, forums, posts, and discussions, always wiling to respond to requests, has amazed me over the years. His persistence and dedication to the facts, and his willingness to change his mind and his theory as new facts presented themselves has been a model of truly scientific thinking, and his passion for the ideas never became an ego thing in any of the discussions I have been in with him over the years. I will miss his presence in our community very much, and will mourn his passing.
     
    Sing and ahimsa like this.
  8. Jimk

    Jimk

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    My deep condolences to Rich's family and loved ones. When I first read the title on my feed reader I thought that there was some well earned award he was being given. It didn't register until I read further that "tribute" was referring to his death. Even now I have trouble accepting that he is no longer here.
    I've been around the ME/CFS community for a very long time and I have never seen anyone who has been as consistently helpful to others, even tempered in his own arguments and in listening to the arguments of others, and as devoted to following a rationally based path to solve some of our puzzle. How he kept track of all the questions, lists, forums, posts, and discussions, always wiling to respond to requests, has amazed me over the years. His persistence and dedication to the facts, and his willingness to change his mind and his theory as new facts presented themselves has been a model of truly scientific thinking, and his passion for the ideas never became an ego thing in any of the discussions I have been in with him over the years. I will miss his presence in our community very much, and will mourn his passing.
     
  9. caledonia

    caledonia

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    I really like Django's idea of a scholarship in Rich's name for up and coming ME/CFS researchers.
     
    merylg likes this.
  10. Sasha

    Sasha Fine, thank you

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    I'm deeply sorry to hear this. Rich was a lovely man - that came loud and clear through his posts on the forums here and on the videos of the talk he gave in Sweden. He was so generous with his time and his interest in our illness was a great help to so many. My sincere condolences to his family.
     
  11. bertiedog

    bertiedog Senior Member

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    I have just read the news and I am so shocked. Rich was a lovely man, I had been in communication with him for many years and he was always so thoughtful and kind and open minded. As new information came to light Rich was always willing to adjust his opinions although of course he didn't ever get away from the role of glutathione and methylation in our illness.

    I do hope that his family know how much we in the ME/CFS community all cared for Rich and how sad we are that we will no longer be able to hear his words of wisdom. I feel like I have lost a very caring friend.

    Pam
     
  12. Forebearance

    Forebearance Senior Member

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    Oh my. This is such a shock.
    I first got to know Rich over on the ProHealth board. I remember when he posted about his simplified methylation protocol and asked if anyone wanted to try it.
    I think I was one of the first couple dozen people to decide to be his guinea pigs and try the protocol.
    I remember how patient he was with us -- how he explained things over and over again to people who were not biochemists and had brain fog and could sometimes be dense or grouchy. I remember how he listened carefully to our experiences and incorporated them into his theory.
    It made a huge impact on me personally that someone with Rich's brainpower saw the plight of people with ME/CFS and wanted to help us. It wasn't his job to help us. He wasn't trying to save an immediate family member. Apparently he just cared and thought he could contribute something.
    Gosh. I will miss him so much.
    Forebearance
     
    Sing and leela like this.
  13. minimus

    minimus

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    Rich was a good man who really was like a saint to the CFS community. We have lost a dear friend, an ally, and a great mind.

    Rest in peace, Rich.
     
  14. nanonug

    nanonug Senior Member

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    As many others have already said, the announcement of Rich Van Konynenburg‎ untimely death was a terrible shock. Many good things have already been said about Rich so I am not going to repeat them. However, there is one bad thing about Rich that needs to be said, and that it is that it sucks terribly that he no longer exists. You shall be missed, my friend!
     
    Nielk likes this.
  15. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    I like the idea of dedicating a day to Rich, but would prefer to memorialize his birth rather that his death.
     
    justy, Tammy and nanonug like this.
  16. August59

    August59 Daughters High School Graduation

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    I really wish Rich could be here to see this medication come to fruition. It would have made him enormously proud to know that his concept on demethylation (put simply) would virtually be made available to help sick people around the world.

    And it may just be the first medication made available for CFS!

    I can say that Rich was a friend of mine and I hope the day comes again that I might be able to walk beside my friend again! That will be a good day!
     
  17. helen41

    helen41 Senior Member

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    I am so sorry. He was an admirable man.
     
  18. qofmiwok

    qofmiwok

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    Words cannot express my sadness at this news. I have known Rich for many years, communicated with him often, and benefited greatly from his knowledge and kindness. Of all the people I have personally known in my life, I admire Rich the most. His nickname around the house is "genius", but he was so much more than that. He helped so many people that he didn't have to help. At a time when our health care system is controlled by greed, he worked selflessly for others. I will remember Rich forever and will miss him.
     
  19. richvank

    richvank Senior Member

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    Thanks to all for the remembrances of Rich and for the kind words of love and support. They are of tremendous comfort to me and to our family.

    Diana Van Konynenburg
     
    taniaaust1, Nielk and Sing like this.
  20. WNM

    WNM

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    I am shocked and saddened by this news. Like many others I corresponded with Rich extensively on the net, however unfortunately I never got to meet him in person. I have had CFS a long time and encountered many people in the field. Rich stood out for me as someone who was incredibly kind, generous and modest. I think these qualities contributed greatly to his brilliant scientific mind, where he was open-minded and holistic in his approach to reconciliation of the many heterogeneous components of CFS.

    In particular Rich greatly inspired me a few years back when I was lost after years of mainstream medical treatment. His kindness and scientific approach gave me my clarity of mind back and as such my belief and trust in myself. Similarly to Sergio I too am now studying medicine, and I hope to be able to contribute more in the future to the scientific understanding of this condition and other misunderstood chronic illnesses. In fact I had my first paper published last year, and much of this was a result of the self empowerment inspired by Rich.

    All my greatest sympathies to Rich's friends and family. Please take some peace from the fact that Rich has inspired many and his legacy lives on. It is certainly immortalised in my mind and will continue to inspire me.

    All the best,
    WillM
     
    Sing likes this.

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