1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
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A Tribute To Rich Van Konynenburg

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Sep 26, 2012.

  1. LaurelB

    LaurelB Senior Member

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    I was so very saddened to hear this news. Rich was such a great, kind man. I was always amazed at how much time and passion he devoted not just to understanding and researching this disease, but in connecting with patients individually to help as many as he could. A tragic loss. My deepest sympathies to his friends and family.
    Enid likes this.
  2. Arise

    Arise

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    Even having joined this forum recently I was shocked and saddened by Richard's death, my deepest condolences to his wife and family.

    I enjoyed his talk on CFS/ME in Sweden that he sent me a link to, he seemed a very generous, humble and genuinely kind person.

    I hope that someone can keep developing upon the work he has done for ME/CFS, so that it will benefit this and other communities as well.
  3. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    He made a difference, a very big difference....Thank you Rich.
  4. Uno

    Uno Senior Member

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    Brighton, United Kingdom
    I cried yesterday and I am crying now. Rich I owe you everything. When I first got sick a doctor in Manchester send me a paper on the Methylation Cycle but I was too scared to try it. I joined this forum and after speaking to a lot of people, including yourself, I trod the waters and slowly began to get a bit better. I am able to walk a few paces, I managed to get to New York, all because of you. I can wash myself on my own and it's all because of you.

    I approached Rich last year and said that my charity, Neuroimmune Alliance, wanted to undertake trials on the protocol in the UK. Rich was happy to help with my applications for funding and was coming over at the first Neuroimmune Alliance event in the summer of 2013. I was due to speak to him next week but that conversation is now lost in time.

    Why God chose to take Rich I cannot say but his work shall not be in vain , I shall make sure no-one forgets it in the UK.

    RIP Rich - I shall miss you more than words can say.
  5. anniekim

    anniekim Senior Member

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    As I wrote on another thread here on PR, Rich was a remarkable man with the rare combined qualities of keen intellect, kindness, generosity and deep humility. I know he will be greatly missed by so so many and my heart goes out to his family.

    I hope it's ok to ask what prompted Rich to take an interest in M.E? - for which I am of course forever grateful.
  6. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    He told me he had a friend that had CFS. They later moved away..
  7. Tammy

    Tammy Senior Member

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    New Mexico
    Shine on Rich........and thanks again for all your help.
  8. Dreambirdie

    Dreambirdie work in progress

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    Rich was a truly exceptional human being. He was a generous spirit, so patient and compassionate with all of us in the online CFS community. He never turned down a question, and was always willing to take the time to help. I am grateful to have known him, and will miss him a lot, as will so many others whose lives he has touched.

    My condolences go out to his family and all his close friends. RIP Rich. We love you.
  9. Tuha

    Tuha Senior Member

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    A death of someone is always sad but now my heart is crying.
    Rich, your effort to try to help the people with our disease was very appreciated in all over the world
    RIP Rich - greeting and sending many thanks from east Europe
  10. anniekim

    anniekim Senior Member

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    Thanks for sharing that
    Sallysblooms likes this.
  11. Ocean

    Ocean Senior Member

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    I was very shocked to hear about this loss. My sympathies to Rich's loved ones.
  12. MDL

    MDL

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    Rich lived his life with passion and a deep sense of purpose; he leaves behind a rich legacy. He was a deeply compassionate and generous soul who never tired of reaching out and trying to help others. Everyone was invited to stand under his umbrella. He will be greatly missed, and his work will live on.
    shannah likes this.
  13. ahimsa

    ahimsa Senior Member

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    Thank you for passing on this very sad news. I never met Rich but I will miss his thoughtful contributions to the Phoenix Rising forum.

    What a terrible time his wife must be going through right now. My thoughts are with her and with all the rest of Rich's family and friends.
  14. Sing

    Sing Senior Member

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    Rich set us a great example of how to help each other, supporting, respecting, and differing--when he often did--in a clear, un-egotistical way. I feel he exemplified how to draw distinctions in different views, without belittling or putting down others. He always stayed clear of negativity, without staying clear of either people or the essentials of any issue. I hope we take his example of generosity, kindness, honesty and responsibility, because those ethical qualities are key to our working successfully together and finding the answers that work.

    Rich gave us a lot of science education over the years, along with a new approach to treatment which many have found helpful. He pulled up our self esteem with his respectful treatment and encouraged us to think more like scientists. He also left the field of medical understanding of ME/CFS in a better place than he found it. For anyone reading this who has not seen Rich in action, I would highly recommend the videos of his talk in Sweden. There are links to the videos on the bottom of this column:
    http://cfspatientadvocate.blogspot.com/2011/11/mt-sinai-conference-rich-van.html
    beaverfury and Dreambirdie like this.
  15. Sallysblooms

    Sallysblooms P.O.T.S. now SO MUCH BETTER!

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    So true Sing. I hope everyone can be more like Rich. He was always a gentleman.
  16. avreed

    avreed

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    SE Florida
    What a sudden and terrible shock. Rich was a passionate medical detective who never tired of deconstructing the web of biochemical mystery. He was a man with great heart and even greater compassion for all those who suffered with the devastation of CFIDS. I have kept a large file of all our emails which I still refer to frequently and also use to educate the less informed doctors in my community. Rich will be very much missed across the many forums he contributed to and will be remembered for his acuity and dedication to all. Many condolences to his family in their time of loss.
    With love and sadness,
    Alison
  17. avreed

    avreed

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    SE Florida
    What a sudden and terrible shock. Rich was a passionate medical detective who never tired of deconstructing the web of biochemical mystery. He was a man with great heart and even greater compassion for all those who suffered with the devastation of CFIDS. I have kept a large file of all our emails which I still refer to frequently and also use to educate the less informed doctors in my community. Rich will be very much missed across the many forums he contributed to and will be remembered for his acuity and dedication to all. Many condolences to his family in their time of loss.
    With love and sadness,
    Alison
    Sing likes this.
  18. leela

    leela Slow But Hopeful

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    Couchland, USA
    I posted this on another thread, but thought maybe it belonged better on the Tribute thread:


    Where once a man stood up for us
    extended hand and mind in trust​
    with ne'er a blighted word to speak​
    and led by heart did wisdom seek;​
    he longed to dredge the mystery from hiding.​

    Where long his shadow once did fall​
    we sense now just his clarion call​
    and what is left behind remains​
    indelible--uncounted gains;​
    his noble heart in memory residing.​

    His counsel many souls did seek​
    those ill and desperate, pale and weak​
    And how his gen'rous steady hand​
    with forthright calm and kindness grand​
    outstretched in patient constancy there guiding.​

    We cannot say what would have come​
    but shall recall what he has done​
    with everlasting heartfelt love​
    as he looks on us from above​
    with wisdom ever potently abiding.​
    roxie60, anniekim, Sing and 4 others like this.
  19. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    NYC (& RI)
    Thank you for this, Rivka.
  20. confetti11

    confetti11

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    I heard about Rich's death during a call made to a fellow CFS sufferer on one of my bad days. It wasn't a bad day because of physical suffering but because of another healthy-bodied friend and confidant who turned on me, inferring this illness must be psychologically-based. How ironic that our community lost one of its biggest non-CFS-suffering supporters on that same day. This grieves me...for Rich's family, for his close friends and for a community that is consistently degraded and invalidated. As well as tirelessly trying to help us get better, Rich validated us...and there are so few who are willing to stand up and do that. He will be sorely missed. Much sympathy to those who were close to him.

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