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Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
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Yes there are about 800,000 of them worldwide if statistics are to be believed
Yes there are about 800,000 of them worldwide if statistics are to be believed
Is that 5% ? Can’t remember what the stats are..
It would be great to meet some of those people ... and listen to their stories.Yes there are about 800,000 of them worldwide if statistics are to be believed
That's great! I hope you will be even better.I've been in a soft remission lately - not 100%, not totally normal in my energy levels but doing better. So far though I've never held on to a remission.
Did you try any specific treatment, medication(s) that helped you?
Thanks.I quit taking Prilosec & Zantac and all other stomach medications, added in digestive enzymes, realized I was allergic to Oats, started avoiding easily digested carbohydrates. I found out that heavy fats like butter and meat give me gastritis.
I quit all sleep medications, no more L-Tryptophan, Benedryl etc.
Been living on protein shakes and vegetables.
Supplements I still take, L-Tyrosine, Fish Oil, Multi vitamin
My inflammation is really down but it is super hard to stick to the no grain / no sugar / no heavy fats / not a lot of meat. I did sneak out for a Starbucks today and the other day when I had a headache I did eat a pint of ice cream. I should be better....
It seems like my body requests mostly fiber, lowish carbohydrate and easily digestible protein with low fat. It's probably too specific to be of use to anyone else other than myself
Did you ever hear of somebody with CFS who had a spontaneous remission? Long term, without relapsing?
Or
Did you hear of somebody who recovered and didn't relapse?
I'm just curious if it's possible.
It would be great to meet some of those people ... and listen to their stories.
How they made this statistics?
I quit taking Prilosec & Zantac and all other stomach medications, added in digestive enzymes, realized I was allergic to Oats, started avoiding easily digested carbohydrates. I found out that heavy fats like butter and meat give me gastritis.
I quit all sleep medications, no more L-Tryptophan, Benedryl etc.
Been living on protein shakes and vegetables.
Supplements I still take, L-Tyrosine, Fish Oil, Multi vitamin
My inflammation is really down but it is super hard to stick to the no grain / no sugar / no heavy fats / not a lot of meat. I did sneak out for a Starbucks today and the other day when I had a headache I did eat a pint of ice cream. I should be better....
It seems like my body requests mostly fiber, lowish carbohydrate and easily digestible protein with low fat. It's probably too specific to be of use to anyone else other than myself