Dr. Bateman answers IOM questions from the community: Part 1
Clark Ellis brings us Part 1 of an interview with Dr. Lucinda Bateman, where she answered questions posed by the patient community ...
Discuss the article on the Forums.

A sentence of M.E. - A project for M.E. Awareness Week (8-15 May ) 2011

Discussion in 'Advocacy Projects' started by drjohn, Apr 25, 2011.

  1. drjohn

    drjohn Senior Member

    Messages:
    169
    Likes:
    24
    PERMISSION TO FORWARD, USE IN NEWSLETTERS AND RE POST ON FACEBOOK PAGES

    Our project, launched in plenty of time for M.E. Awareness Week (8-15 May) 2011, A sentence of M.E., has a deliberately obvious double meaning: The horrible experience of this largely invisible and unpredictable disabling illness that seems to some like a prison sentence is, literally, just that for the most severely affected, who are housebound or bedridden.

    So, we are asking people, who are affected by M.E, (Myalgic Encephalomyelitis), not only as sufferers but also their carers, family, friends, maybe even doctors and nurses, doing their best to care for them, to express how it is in just one sentence, in order to improve public knowledge and raise awareness.

    You may wish to use your sentence to tell everyone about a single episode, or about how it is to endure M.E. day after day, year in year out. Its up to you. And you can submit as many sentences as you like. You can do so in your own name or anonymously if you prefer (say, just a first name, or a made up name, or M.E. sufferer, 10 years, London). Well put them all on our website, Facebook, Twitter and M.E. sufferers from all over the world are invited to take part.

    There is a universally recognised International M.E. Awareness Day on 12th May every year but, for us, every day is M.E. Awareness Day. So, there is no closing date for this one. Send any sentences you have to drjohngreensmith@mefreeforall.org with A sentence of M.E. in the subject line.

    [Note: we have sent this letter to a number of newspapers and magazines in the UK and to other countries that have English language newspapers but if you would like to make sure that we have sent it to your favourite magazine or newspaper (or translated into your native language if you can provide a translation), send us the e-mail address of the editor or letters page and we'll get it to them.]

    Best wishes
    drjohngreensmith@mefreeforall.org
    Dr John H Greensmith
    ME Free For All.org

    To read the letter from Dr John Greensmith
    and see details of other organisations' plans for M.E Awareness week
    click http://mefreeforall.org/wp/m-e-awareness-week-2011-events-around-the-world/

    Follow us on Twitter
    http://twitter.com/#!/MeFreeForAllOrg

    Join us for a mix of serious and fun stuff on Facebook
    http://www.facebook.com/profile.php?id=100000948699086#!/profile.php?id=100000948699086

    Cheers
    John
    drjohngreensmith@mefreeforall.org
    Dr John H Greensmith
    ME Free For All. org
     

See more popular forum discussions.

Share This Page