1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
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Never Ask Us if We're Hungry -- The Answer's Always No
There are three of us here and for many years, none of us ever got hungry. When our brains would turn to mush, when our faces would go numb, and we would start the invisible vibration which is the signature dance of ME/CFS, we knew we needed to eat.
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A Senator and a Representative who might be interested in us (bipartisan)

Discussion in 'Action Alerts and Advocacy' started by WillowJ, Jul 10, 2011.

  1. WillowJ

    WillowJ Senior Member

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    WA, USA
  2. eric_s

    eric_s Senior Member

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    Switzerland/Spain (Valencia)
    Are there any organisations in these states? My guess would be that they could best approach them.
  3. WillowJ

    WillowJ Senior Member

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    WA, USA
    Washington State, not yet, but there do appear to be some support groups. Iowa, haven't heard of one and can't find one by searching.

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