Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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A Radical Care Pathway for ME/CFS - NHS Managers Network

Discussion in 'General ME/CFS News' started by Bob, Oct 8, 2013.

  1. Bob

    Bob

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    NHS Managers Network - The Essential Resource for NHS managers

    A Radical Care Pathway for ME/CFS
    Guest Editorial
    by Nancy Blake
    3rd October 2013

    http://www.nhsmanagers.net/guest-editorials/a-radical-care-pathway-for-mecfs/


    An interesting and helpfully provocative article by Nancy Blake. Worth a read.
     
    Jarod, Dolphin, Valentijn and 3 others like this.
  2. peggy-sue

    peggy-sue

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    Worth all health professionals reading it - and taking it seriously. :thumbsup:
     
    Valentijn and Bob like this.
  3. peggy-sue

    peggy-sue

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    The minute I read it, I put a link to this thread in another one, because it was completely relevant to the OPs worries.:)
     
    Bob likes this.
  4. maryb

    maryb iherb code TAK122

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    Bob
    how refreshing to read something like this - sounds like she has some experience of real ME patients.
    Pity she's not an NHS GP - we'd all be flocking to her!!!
     
    Valentijn, peggy-sue and Bob like this.
  5. MeSci

    MeSci ME/CFS since 1995; activity level 6

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    peggy-sue, Bob and rosie26 like this.
  6. anniekim

    anniekim Senior Member

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    It's a good article. I googled the author. She is described as recovering from ME since 1986
     
    MeSci and Bob like this.
  7. Bob

    Bob

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    MeSci and Valentijn like this.
  8. snowathlete

    snowathlete

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    A welcome article. Problem is that NHS docs likely can't follow it all even if they want to as its not supported by the NICE guidelines. But still good to see as stuff like this helps to gradually change the false beliefs of doctors regarding the illness.
     
    Bob and Valentijn like this.
  9. Desdinova

    Desdinova Senior Member

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    Sigh... So it has nothing official to do with the NHS. Still it wasn't a bad read.
     

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