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A positive experience in the Aviano clinic in Italy

Discussion in 'General ME/CFS Discussion' started by A.B., Jan 17, 2014.

  1. A.B.

    A.B. Senior Member

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    I live in Italy and do not yet have a diagnosis. Yesterday I had my first appointment with a CFS specialist in Aviano and I'm very happy with the visit. This is the first time I've met a doctor that seemed to know what he was doing. He was also very polite and never made me feel insecure. He was very interested in past infections and took a detailed history.The visit took over an hour and he gave me a long list of lab tests that still need to be performed to exclude known conditions. Public health care will cover most of the expenses. He speculated that my symptoms are probably either due to the empty sella syndrome (which previous doctors discovered but never acted upon) or lyme disease (apparently my symptoms match it very well). Before the visit, there was a psychologist who tried to be relevant, but it was optional and she did not insist further when I declined.

    This whole experience was so different from my previous experiences that I felt the need to write about it here and leave a little note to other patients from Italy who may be considering visiting this clinic. Not all is lost yet.
    Valentijn, merylg and ukxmrv like this.
  2. joshi81

    joshi81 Senior Member

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    Hi @A.B. i'm italian too (from rome) have u benn to Tirelli or Who? and i'm curious about lyme because i'm investigating as weel (i've made the LTT test at infectolab through associazione MARA)... which test tehy gave u for borrelia?
  3. A.B.

    A.B. Senior Member

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    Hi,

    It was Prof. Tirelli's department. The doctor I saw was Arben Lleshi. I'm supposed to test borrelia burgdorferi IgG and IgM in blood, and in cerebrospinal fluid. According to the doctor, borrelia likes to retreat into the cerebrospinal fluid where it cannot be detected with blood tests.
  4. joshi81

    joshi81 Senior Member

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    Interesting.... i ran LTT test and i am curious to see what comes back... at the beginning of my symtoms i ha both antibosies(igm) and westernblot borderline three times... the became negative

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