1. Patients launch a $1.27 million crowdfunding campaign for ME/CFS gut microbiome study.
    Check out the website, Facebook and Twitter. Join in donate and spread the word!
ME/CFS and the Magic of the Canine Factor
There's been plenty of research indicating that having pets is good for your health. I never really noticed any particular benefits to having cats, though that may have had more to do with my cats. They've been fairly indifferent to my presence and we've shared a live-and-let-live...
Discuss the article on the Forums.

A LOT of totally incorrect/wrong information and advice given

Discussion in 'General ME/CFS Discussion' started by leokitten, Oct 18, 2013.

  1. EMilo

    EMilo Elizabethmilo.com

    Messages:
    183
    Likes:
    99
    Seattle, WA
    Thank you! Yes, I have considered Kogelnik, Bateman and Chia for doctors within about 20 hours drive. Obviously, KDM or Peterson would be great, but I'm not holding out hope.
  2. SOC

    SOC Moderator and Senior Member

    Messages:
    4,969
    Likes:
    5,518
    USA
    Good luck! FWIW, I've actually found the air travel (although difficult in its own way) to see my current, more distant, specialist causes me less problems than the long car trip to my previous (less distant) specialist. It's probably because the in-transit time is much less.

    That might not be true if I weren't traveling with my husband who takes care of everything. :hug: I do the whole thing in a wheelchair to avoid overexerting and PEMing myself. I've even been known to put on sunglasses and headphones, close my eyes and act like luggage. :p It keeps the stimulus and stress to a minimum. The whole thing is over in a few hours. Riding in a car for hours and hours and hours was much worse.

    ETA: Someone mentioned in a post yesterday that she has a CFS/FMS/Lyme doctor in WA or OR (I'm pretty sure), that she really liked. He's not one of the top docs, but seems reasonable. He encouraged this person to see KDM in Reno, so he seems to know the field. This patient seemed much happier with this local doc than with KDM. ;) That might be a closer doc worth looking into. If I find the thread again, I'll come back here and link it.
    Last edited: Jan 8, 2014
    Valentijn and EMilo like this.
  3. EMilo

    EMilo Elizabethmilo.com

    Messages:
    183
    Likes:
    99
    Seattle, WA
    @SOC If you see that post again about the WA doc, PLEASE let me know!! and Thanks for the tip about flying. You're right, I'm sure, but I think I might just be too scared to fly right now. I don't know...
  4. EMilo

    EMilo Elizabethmilo.com

    Messages:
    183
    Likes:
    99
    Seattle, WA
    @SOC, I've searched and searched for that post re a WA or OR doctor and can't find it. I would be so impressed if a doctor here knew who KDM was! If you can think of anything else from that thread (what the title might have been, any key words or phrases), please let me know so I can search a bit better. THank you!!
  5. SOC

    SOC Moderator and Senior Member

    Messages:
    4,969
    Likes:
    5,518
    USA
    Check out post #22 in this thread. You could PM Eucalypta to see if she's willing to share her doc's name and phone number with you.

    Anti-anxiety med can help with fear of flying. You'd only need to take them while you are flying, not all the time. :)
    EMilo likes this.
  6. EMilo

    EMilo Elizabethmilo.com

    Messages:
    183
    Likes:
    99
    Seattle, WA
    Thank you so much @SOC! I have done that. Also happy you showed me that conversation because I was seriously considering seeing KDM in Reno, but I can't afford it by the sounds of it. I really appreciate your help!
  7. Leopardtail

    Leopardtail Senior Member

    Messages:
    563
    Likes:
    315
    England
    I agree very strongly with this. CFS varies with length of disease, it also varies between individuals. As per professor stephen Holgate I agree that is a disease umbrella not a single disease. And as per Leokitten's statement I take that view that taking a good look at your symptoms, deciding what lab work needs to be done and then doing it makes perfect sense.

    One CFS sufferer can have completely opposite lab work to another. For some its methylation, others Selenium, other Cystine, yet others low intra-cellular Potassium or Magnesium etc etc.

    I suspect it's not without reason that most research into CFS shows roughly 30% have the issue being investigated (e.g. low NADH), 30% have the opposite issue, 30% have no issue. The fact that we vary greatly in our symptoms also hints at this.
    Wayne likes this.
  8. Leopardtail

    Leopardtail Senior Member

    Messages:
    563
    Likes:
    315
    England
    I didn't know that about the wheelchairs, parking etc.... That is barbaric..... S.W. and is such a &£*$*$*** grrr!!!!
  9. Izola

    Izola Senior Member

    Messages:
    331
    Likes:
    310

    My Doctor here in the USA said the same thing. Guess I need to write her another research memo. I just wrote my P2p letter. I'll not be doing anything for a long while. I'm only a day away from my latest emergence from relapse. Iz

See more popular forum discussions.

Share This Page