The 12th Invest in ME Conference, Part 1
OverTheHills presents the first article in a series of three about the recent 12th Invest In ME international Conference (IIMEC12) in London.
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A journey into illness. Harvard Gazette

Discussion in 'General ME/CFS News' started by beaverfury, Jan 16, 2015.

  1. beaverfury

    beaverfury beaverfury

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    http://news.harvard.edu/gazette/story/2014/12/a-journey-into-illness/

    “I got sick the way Hemingway says you go broke: gradually and then suddenly,” wrote Meghan O’Rourke in “What’s Wrong With Me?,” a 2013 New Yorker article that chronicled her struggles with a mysterious illness.

    What was wrong with the accomplished poet and memoirist was an immune system that had gone haywire, attacking the very cells it was supposed to protect. According to the American Autoimmune Related Diseases Association, as many as 50 million Americans suffer from autoimmunity, and the numbers are on the rise.

    After her mother died in 2008 — an experience she wrote about in “The Long Goodbye” (2012) — O’Rourke contracted mononucleosis and “just never got better.” Two years ago she returned from a trip to Vietnam with a red rash on her arm, a fever, and a rising fear.

    “That’s when I got an autoimmune disease diagnosis, because it was pretty clear I couldn’t function. I couldn’t think of words. Something was very wrong.”

    O’Rourke, 38, was diagnosed last year with Lyme disease, a bacterial infection caused by a tick bite that can start off feeling like the flu and progress to nerve damage, arthritis, and, in severe cases, neurological problems. “I got much better,” she said. “But either the autoimmunity preceded the Lyme disease, or it helped trigger the autoimmunity.

     
    Last edited: Jan 16, 2015
  2. beaverfury

    beaverfury beaverfury

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    Why can't I embed the video ? Dammit
     
  3. Bob

    Bob

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    lol, don't try to embed it... just post the full YouTube link and it auto-embeds itself.
     
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  4. beaverfury

    beaverfury beaverfury

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    Thank you, Bob !
     
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  5. beaverfury

    beaverfury beaverfury

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    It was interesting to hear O'rourke quote Noel Rose (at 13.45) talking about autoimmunity, "the patient is the loaded gun, the environment is the trigger".

    I prefer the third aspect of randomness of antibody production that Jonathon Edwards puts forth as happening in Rheumatoid Arthritis (if I have understood him correctly). Psychically, it takes a load of blame off.

    O'rourke discusses the usual suspects of autoimmunity, viruses, toxins, altered microbiome, epigenetics, the hygeine hypothesis. She evens mentions a new suspect - Salt!
    "In other words, what I'm interested in is that it may be the case that we've caused our own autoimmunity, albeit unintentionally".
     
    Last edited: Jan 16, 2015
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  6. beaverfury

    beaverfury beaverfury

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    Good quote at 51.50, from Alphonse Daudet (who had syphilis)

    "Pain is always new to the sufferer but loses it's originality for those around him" .

    "Everyone will get used to it, except me".
     
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