Review: 'Through the Shadowlands’ describes Julie Rehmeyer's ME/CFS Odyssey
I should note at the outset that this review is based on an audio version of the galleys and the epilogue from the finished work. Julie Rehmeyer sent me the final version as a PDF, but for some reason my text to voice software (Kurzweil) had issues with it. I understand that it is...
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A job for a lone Congress member: Speak up for a forgotten disease

Discussion in 'Action Alerts and Advocacy' started by beaker, Jun 3, 2015.

  1. beaker

    beaker ME/cfs 1986

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    Our friend Llewellyn King has written a wonderful new blog: A job for a lone Congress member: Speak up for a forgotten disease

    There is much more , and is very well written. I tweeted article @ my senators and congress person.
    If you would like to do same , you can find names here: https://www.govtrack.us If you click through name you will end up w/ website or some kind of contact where you can find their twitter account if you do not know it.

    Also email contact info can be found this way. If you do not tweet you can email a copy of this article to your representatives. Who knows ? Maybe one of them will take up the job !

    ETA Since I am in NYS and article mentions Lyndonville I used #LyndonvilleNY Article also brings up Incline Village so if you are in NV maybe good to highlight that. Cheers

    ETA If everyone would send to their reps, we could cover them all ! : )
     
    Last edited: Jun 3, 2015
    Snow Leopard, ahimsa, zzz and 4 others like this.
  2. Sasha

    Sasha Fine, thank you

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    Terrific article - I hope all US PWME and their supporters will email it to their senators.
     
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  3. beaker

    beaker ME/cfs 1986

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    Yes ! And also your District's House of Representative Member
     
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  4. Nielk

    Nielk

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  5. Sasha

    Sasha Fine, thank you

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    beaker likes this.
  6. *GG*

    *GG* Senior Member

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    Concord, NH
    So this could also be posted on our Politicians Facebook pages, right?

    GG

    PS I"m not on Twitter.
     
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  7. Nielk

    Nielk

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    Yes. The more visibility by congressional representatives, the better.
     
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