Phoenix Rising tells QMUL: release the PACE trial data
Mark Berry, Acting CEO of Phoenix Rising, presents the Board of Directors’ open letter to Queen Mary University of London (QMUL) urging them to release the PACE trial data, and hopes that other non-UK organisations will join British charities in the same request...
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A horrific end to a living death RIP

Discussion in 'General ME/CFS Discussion' started by Shawn, Oct 31, 2016.

  1. Shawn

    Shawn Senior Member

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    This video sums up very well how bad severe ME is ,in this case literally a living death and how the abuse from the NHS and her being sectioned ultimately lead to her death.



    God Bless.
     
  2. slysaint

    slysaint Senior Member

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    Unfortunately it's regarded as 'yesterdays news' but sadly it is as true today as it was then. AND things are getting even worse for PwME:cry::(
     
    taniaaust1 and ahmo like this.
  3. Shawn

    Shawn Senior Member

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    Indeed past news but in need of a reminder as its one of the most shocking stories I have heard so far ,we live,we suffer, we forgive but we don't forget.....
     
  4. Cheesus

    Cheesus Senior Member

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    I could only watch part of the video. It just makes me too angry.
     
  5. Daffodil

    Daffodil Senior Member

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    i think about sophia mirza sometimes. it was a story i could never forget.
     
  6. hixxy

    hixxy Senior Member

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    It may be a reminder, but we aren't the ones in need of reminding. You can be pretty sure no one outside the ME community is watching this video.
     
    Last edited: Oct 31, 2016
    Hanna, Izola, Jennifer J and 2 others like this.
  7. taniaaust1

    taniaaust1

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    Same with 19 year old Alison Hunter and her sectioning and death over ME here in Australia years back. I dont know where her full story is now online though there seems to be watered down versions about the place.

    Is there a ME rememberance day? I know there is a ME day but is there a rememberance one..if not there should be.
     
  8. Shawn

    Shawn Senior Member

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    To suffer from severe ME is in effect an almost living death but to be punished for your suffering is beyond comprehension even over here in communist China ME sufferers are not treated that way and in fact they are given medical care ,and that's saying a lot
     
    Last edited: Nov 1, 2016
    SuzieSam likes this.
  9. Jennifer J

    Jennifer J Senior Member

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    Zou Xiangyu quote from: http://forums.phoenixrising.me/index.php?threads/so-tired-i-want-a-friend-fighting-together.42970/

    Off thread topic for a moment, hi @Shawn, reading your above quote made me think of @Zou Xiangyu. I was wondering if you have the energy maybe you could point @Zou Xiangyu in some good directions that may help. Thank you for sharing all you have shared with us. :)

    @Zou Xiangyu, I've been thinking of you since you first posted. I hope things are going better and you were able to connect with @Justin_Sohan and hopefully some other people. :hug:
     
    Comet likes this.
  10. Shawn

    Shawn Senior Member

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    if you see my thread here http://forums.phoenixrising.me/inde...g-cause-of-my-cfs-anti-nmda-antibodies.47413/ you'll know why I have this opinion ,I found the right doctor at the right specialist center ,I was referring more to the fact it's easier to experiment and get treatments here and people dont get sectioned for having ME
     
    Jennifer J likes this.
  11. Jennifer J

    Jennifer J Senior Member

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    Thanks, @Shawn. :)

    @Zou Xiangyu, check out Shawn's thread: http://forums.phoenixrising.me/inde...g-cause-of-my-cfs-anti-nmda-antibodies.47413/
     
  12. Jeckylberry

    Jeckylberry Senior Member

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    its all about self interest and medical bigotry. Probably called mum's care Munchausen's by proxy which justifies 'rescuing' the child. I'm glad at least she has certainty, albeit post mortem. It gives her fuel and courage to fight the good fight.
     

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