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California 2014: IACFS/ME Day Four: Translating Science into Clinical Care: 23 March 2014
It is Day Four and the final conference session from San Francisco. In this review we hear from Searcher about the neurosciences session, and PET and EEG analysis, then a study on cognitive functioning, followed by a debate on the revised 2014 IACFS/ME Primer, and then we wrap-up the...
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A Good Neurologist - Eastern Mass

Discussion in 'ME/CFS Doctors' started by jimells, Jun 15, 2012.

  1. jimells

    jimells Senior Member

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    northern Maine
    I had to wait six months to see Dr Peter Morin, but he is worth it. He travels to northern Maine periodically, which is where I saw him, and probably explains the long waiting list.

    He says he is not a CFS specialist, but is familiar with our issues, and how poorly we are treated by most of the medical industry. Instead of shrugging his shoulders at all the obvious systemic symptoms and throwing some horrible antiseizure med at the migraines, he actually wants to find out what is causing them. Can you imagine? I've been looking for a doctor like this for over eight years!

    I was actually treated with respect and compassion instead of disdain. And patient knowledge does not threaten his manhood. I'm guessing he skipped the med school class where they teach doctors they have to be the smartest person in the room.

    If I heard correctly, he is even going to call my primary care doc to discuss my florinef treatment, saying, "Florinef is not a trivial medication, and its use needs to be closely monitored". I never heard of doctors actually talking to each other. I thought it was against the law.

    Will he actually be able to help me? I don't know, of course, but he is at least going to try. I can't ask for more than that.
    Ai-Yai, SOC and Sushi like this.
  2. Sushi

    Sushi Moderator and Senior Member Albuquerque

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    Albuquerque
    Great news!

    By the way, re: migraines, mine go away when I treat gut infections.

    Best wishes,
    Sushi
  3. floydguy

    floydguy Senior Member

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    Good luck! My mom is from Aroostock County - don't know if you're that far up. She lives mid-coast now. I wouldn't mind seeing a good neurologist. They seem particularly difficult to find especially for the controversial issues like Lyme and ME. He must be from Maine originally!
  4. jimells

    jimells Senior Member

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    northern Maine
    Hi floydguy, yes, I live near Houlton. I tell people in southern Maine, most of whom have never been north of Acadia, "Drive to the end of Interstate 95 and turn left!"

    I suspect the neuro is not from Maine; perhaps he has a summer camp nearby. I felt absolutely horrible at the appointment, so there was no chit chat. Next time I see him I'll have to ask.

    Another strange thing happened today. His local office, which is the local hospital 'specialty clinic', actually called me with the referrals all setup. This is truly amazing. The primary care provider's office took three weeks, and repeated phone calls, to fax a referral form to the rheumatologist office. It sure is hard to understand why some offices work so well, and others are almost totally useless.
  5. Ai-Yai

    Ai-Yai Mad Genius

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    Mom
    Sounds pretty good and promising in "light" of typical CFS businessmen experts... i.e. comparing to most of them. :rolleyes:
    Really wish you good luck !

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