The 12th Invest in ME Research Conference June, 2017, Part 2
MEMum presents the second article in a series of three about the recent 12th Invest In ME International Conference (IIMEC12) in London.
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A Chinese Perspective on SEID

Discussion in 'General ME/CFS News' started by Never Give Up, Feb 27, 2015.

  1. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    English Chinese News Service has an article on ME/CFS, they are using the name SEID. It starts out fairly well, but, moves into an estimated prevalence rate of 10-25% in 10 Chinese cities, and ends with psychogenic ideas, CBT, and GET. All the same, they are talking about it respectfully, acknowledging it being a major problem in China, and bringing it to the attention of their readers.

    http://www.ecns.cn/2015/02-25/155683.shtml
     
    jimells, ahmo and Simon like this.
  2. taniaaust1

    taniaaust1 Senior Member

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    I guess that shows that the name change wont remove the CBT and GET beliefs.. sighs.. now 10-25% of people in cities have SEID. I think the ONLY way they will get rid of the psych beliefs attached to ME/CFS would be have actual testable abnormalities in the diagnostic critera so to turn it into a real disease...
     
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  3. alex3619

    alex3619 Senior Member

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    A name change was never likely to reverse psychobabble. The definition will fail unless its accompanied by a massive education program. To be fair though this is a journalist's viewpoint, and seems to conflate chronic fatigue with SEID.
     
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  4. adreno

    adreno PR activist

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    Just goes to show that they didn't read the report, which specifically disrecommends CBT/GET.
     
  5. Never Give Up

    Never Give Up Collecting improvements, until there's a cure.

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    @adreno, your photo and caption made me laugh out loud, and then sort of cry. I don't know if you are an artist, the originator of this piece, but now would be the perfect time for an article displaying an artist's depiction of life with ME/CFS!
     
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  6. adreno

    adreno PR activist

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    No, I shamelessly stole it from a blog somewhere. Though I'm neither female, nor use a wheelchair, I think it illustrates pretty well the feeling of having ME/CFS.
     
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  7. Snow Leopard

    Snow Leopard Hibernating

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    10-25%? Is this a bad translation from a tenth of that?
     

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