AVIVA Semi-Finals: National ME/FM Action Network is competing for $100,000
The National ME/FM Action Network in Canada is competing for $100,000 for biomedical research of ME and FM in the Aviva Community Fund contest. With thanks to all who helped, they made it through the first round of voting into the Semi-Finals.
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A Celebration of Hope and Progress

Discussion in 'Phoenix Rising Articles' started by Phoenix Rising Team, Feb 8, 2013.

  1. Sasha

    Sasha Fine, thank you

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    Thanks, that's v. helpful! :)
     
  2. peggy-sue

    peggy-sue

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    SOC, I'm not sure what you mean. I don't have answers, I'm just aware that there has been a general campaign to drink 8 large glasses of water a day (at least there has been in th uk) that it's the bottled water industry hype and it's just not true.

    I don't know of any recommendations for ME about drinking tons (quarts;) ) of water. If you don't do something to make the water stay in your body, ostensibly to bulk up blood volume, (I don't know if this happens though) all that will happen is you will pee it out again. If you don't, you will start putting all your electrolytes out of kilter.

    My own experimentation with using rehydration salts did not work... not when I used proprietary uk ones.
    I did find some Spanish ones my OH had brought back from a cycling holiday, and I used them.

    For some strange reason, they really did seem to help with my energy. But I ran out of them and they seemed horribly expensive to buy from inside the uk.
    Later on, I found otherPWME had had considerable improvements using the same ones, (all anecdotal, gleaned from forums I found comments on while googling the stuff. Not forums I'm signed up to.)
    However, I haven't pursued this or tried to get my mitts on more of the stuff since.
     
  3. Little Bluestem

    Little Bluestem Senescent on the Illinois prairie, USA

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    Have you looked at the ingredients in the Spanish product to see if you could make something similar yourself?
     
  4. peggy-sue

    peggy-sue

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    I thought I'd replied (my pc cut out in the middle though).

    I did work out the ingredients :) I must have had my brain on that day - but I didn't have the relative proportions of each, which I assumend was what was important.
    The big problem with proprietary ones in the uk is they're all full of aspartame. I'm sure the Spanish one had glucose.
    It was all a very long time ago and I didn't persevere with trying to get hold of more because of the cost.:redface:
     
  5. Desdinova

    Desdinova Senior Member

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    So they're going to focus on symptom treatment and management and encourage life style management. Looks like a lot of veteran ME Docs and researchers are refocusing, moving on or retiring.
     
  6. ukxmrv

    ukxmrv Senior Member

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    This is hardly a celebration of hope and progress. From what has been posted it seems to be very poor quality and nothing to do with ME.
     

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