International ME/CFS and FM Awareness Day is May 12: The World Will Know
Did you know that May 12 belongs to us? Lots of us are aware of this. We share the buzz on it amongst ourselves. We add blue ribbons to profile pictures. We raise our voices, join our hands, mount the few podiums available to us and tug at the sleeve of the rest of the world.
Discuss the article on the Forums.

"A CBT Model of Understanding the Truncated Graph" (PACE Trial, etc.)

Discussion in 'General ME/CFS News' started by Tom Kindlon, Mar 31, 2014.

  1. Tom Kindlon

    Tom Kindlon Senior Member

    Messages:
    315
    Likes:
    1,107
    (3 minutes 49 seconds)
    Another cheeky video from @maxwhd (from Twitter).

    It includes various quotes which at least partly explain why people can have difficulties getting disability and insurance payments.


    ----
    Comment from me:...

    And of course three of those people, Peter White, Michael Sharpe & Trudie Chalder were the principal investigators on the PACE Trial, a trial that cost £5 million of UK taxpayers' money (including some money from the Dept. of Work & Pensions). It found that: "There was no clear difference between treatments* in terms of lost employment" (ref: http://www.plosone.org/article/info%3Adoi%2F10.1371%2Fjournal.pone.0040808)

    *Graded Exercise Therapy, Cognitive Behavioural Therapy, Adaptive Pacing Therapy and Specialist Medical Care alone (everyone got Specialist Medical Care)
     
    Valentijn, Esther12 and Tito like this.
  2. A.B.

    A.B. Senior Member

    Messages:
    1,079
    Likes:
    3,609
    "There is good evidence that being on benefits is a predictor of poor outcome."

    There is also good evidence that hospital admission is a predictor of poor outcome, so let's shut down these harmful hospitals while we're cutting equally harmful benefits.

    Seriously, what's wrong with these people? Can't they think properly?
     
    greebo, Valentijn, peggy-sue and 7 others like this.
  3. Esther12

    Esther12 Senior Member

    Messages:
    5,746
    Likes:
    7,460
    It's always pissed me off how academics on good salaries have been so bold in speculating about the role of secondary gain in perpetuation disability for patients - ESA WRAG is something like £4,000 a year, and means tested! That's not a great incentive for dysfunctional behaviour!

    There seems to be rather more caution when it comes to recognising the incentives which are in place to encourage researchers to make exaggerated claims about their own expertise (eg: The thread on James Coyne's recent correspondence with the BMJ).

    "While there is some reason to suspect that we may eventually uncover the neurological underpinnings of the modern manifestation of quackery, that should not blind us to other potentially important psychosocial factors, such as the secondary gain (monetary, social and psychological) which accrues as a result of an inappropriate adoption of the expert role."
     
    Tito, Valentijn, peggy-sue and 2 others like this.
  4. alex3619

    alex3619 Senior Member

    Messages:
    8,833
    Likes:
    16,629
    Logan, Queensland, Australia
    Its the "nudge, nudge, wink, wink, say no more" school of science.



    Its a basic principle of research that association is not necessarily causation. Yet what else have they got? They don't have causal mechanisms to investigate, just vague claims.
     
    peggy-sue and SOC like this.

See more popular forum discussions.

Share This Page