Invest in ME Conference 12: First Class in Every Way
OverTheHills wraps up our series of articles on this year's 12th Invest in ME International Conference (IIMEC12) in London with some reflections on her experience as a patient attending the conference for the first time.
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9 weeks on Valcyte

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by undcvr, Jan 6, 2011.

  1. aquariusgirl

    aquariusgirl Senior Member

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    Yeah, it was Joseph Brewer who said that & I thought he knew his way around this disease, so I was kinda surprised. Thanks for responding.
     
  2. Timaca

    Timaca Senior Member

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    Aquariusgirl~
    According to the HHV-6 foundation those titers are not high enough to think there might be an active infection going on. See: http://www.hhv-6foundation.org/testing.htm
    My antibody titers for HHV-6 have been 1:320 and 1:640. They dropped to 1:80 on valcyte and I was ecstatic. (Using Focus lab)
    I also have very high antibody titers to Coxsackie B3 and B4 (measured at ARUP lab). Consider testing for those pathogens. See: http://www.enterovirusfoundation.org/chronicinfections.shtml

    Best, Timaca
     
  3. Grape Funk

    Grape Funk Senior Member

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    Aquarius did you test for any other viruses beside the HHv6a?
     
  4. aquariusgirl

    aquariusgirl Senior Member

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    Thanks Timaca. Helps to have something to compare to.
    Been meaning to run the Arup tests forever.

    Grapefunk: Yes, EBV, CMV, Mycoplasma Pneumonia.

    Brewer said I had chronic EBV. But I think he is more concerned about the XMRV. I haven't tested yet, but he thinks, as do I, that its fingerprints are all over my family.. ie familial history of prostate/breast cancer.
     
  5. undcvr

    undcvr Senior Member

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    NYC
    Tell Brewer to focus on EBV. Montoya does not consider it an active infection unless your IgG by IFA is over 1:320, just fyi.
     

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