The 12th Invest in ME Conference, Part 1
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9 days on ldn, still tired and spacey

Discussion in 'Antivirals, Antibiotics and Immune Modulators' started by Mary, Sep 27, 2015.

  1. Mary

    Mary Senior Member

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    I took 1.5 mg. 2 nights, then down to 0.5 mg. for one or 2 nights, then down to 0.25 mg. for a couple of nights and now am at 0.125 mg.

    I don't know what the continued spaciness and fatigue mean- herxing? But am having trouble functioning because I don't have much energy, house is a worse disaster than usual.

    I have my follow-up phone appt with Dr. Kaufman tomorrow and will get his opinion, but wanted to see if anyone here had gone through this and ended up with a positive result. I just don't know if this stuff is helping or hurting me. Any input is welcome! :sluggish:
     
  2. Tazird

    Tazird

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    are you referring to iodine or ?
     
  3. Tazird

    Tazird

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    im gonna guess u are. I've been on it a month and a half maybe 2. I take 200mg and i haven't felt better nor worse. The side effects you are referring to are "detox" effects. This is normal and could mean its working.

    When you go on these things you need to know that its gonna get worse before it gets better!
     
  4. Mary

    Mary Senior Member

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    No, I'm referring to low dose naltrexone. I have detoxed on iodine before, but this is a completely different substance and experience. ldn is supposed to help boost or modulate the immune system. It affects endorphins, you can read more about it here: http://www.lowdosenaltrexone.org/

    Thanks anyways though! :)
     
    alkt likes this.
  5. daisybell

    daisybell Senior Member

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    I guess it could be a coincidental flare.... Or perhaps LDN is unfortunately not for you. I noticed some benefits in about a week, but had some teething side effects for several.
     
  6. Mary

    Mary Senior Member

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    I know it's not coincidental - when I tried ldn 5 years ago, I got very spacey and just stopped it and the spaciness went away. This time I keep lowering the dose, the fatigue and achiness and spaciness are less, but still there and still interfering with functioning.

    That's what I'm trying to figure out - whether it's good for me or not, if this is herxing or healing or something, or if it means I should stop - Dang! - there's no easy way to know --

    What were your "teething" side effects? (never heard of that one :rolleyes: though we do get all sorts of weird symptoms!)
     
    alkt likes this.
  7. minkeygirl

    minkeygirl But I Look So Good.

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    Maybe switch to mornings? I know you said you are sleeping but maybe it's doing something snd messing you up more than you think.

    It's also an antiviral so maybe that.
     
    alkt likes this.
  8. daisybell

    daisybell Senior Member

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    My side effects were vivid dreams, some insomnia, abdominal cramps...
     
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  9. ahmo

    ahmo Senior Member

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    I had some herx reactions, needed to use coffee enemas during my start-up. So sorry you're having it rough.:hug::bouquet:
     
    Mary likes this.
  10. Mary

    Mary Senior Member

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    I've thought of the antiviral part, and that's what I'm wondering, whether it's killing viruses (okay, I guess you can't kill them) but suppressing them or whatever our bodies do to viruses, and if that's why I feel so crappy. I'm getting used to it now .....

    I don't think taking it in the morning would make feel any better. I think people usually do that if it's interfering with sleep but if anything, I'm sleeping better with the ldn because it makes me so tired!
     
    alkt likes this.
  11. Mary

    Mary Senior Member

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    This could be a herx reaction, I just can't tell Did it eventually start helping you? How long did the herx go on?
     
  12. ahmo

    ahmo Senior Member

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    Yes, it's definitely helped. By 3 months, it was clear that I had much increased stamina. How long the reactions? I can't recall, since I was already so involved in detox and CEs to deal w/ it. The sleep disturbance wasn't too bad, didn't last long.
     
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  13. minkeygirl

    minkeygirl But I Look So Good.

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    I don't think anti virals kill the viruses. They just stop them from replicating. But I've gotten pretty sick from avs so the viruses could
    Be really pissed off.
     
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