Welcome to Phoenix Rising!
Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.
To become a member, simply click the Register button at the top right.
Dr. McClure,
Please withdraw from the U.S. Government's SEP (Special Emphasis Panel) for ME/CFS.
I have lost 35 years of my adult life to this disease. We have to demand researchers who recognize the disease, and we have made this clear to NIH.
Here is my letter, which can be used for the dentists and shrinks as well.
Marty hasn't come to tell you yet...here is the rest of the exchange:
I sent the following email to Myra McClure today:
"Please withdraw from the U.S. Government's SEP (Special Emphasis Panel) for ME/CFS.
I have lost 35 years of my adult life to this disease. We have to demand researchers who recognize the disease, and we have made this clear to the other members of this panel."
Her reply:
"I already have."
Thank you Marty!
Bon appetit'
Katrina
I think this deserves a new thread.. Can you make one??
correction...YES lol