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72,000 ME/CFS Advocates

Discussion in 'Action Alerts and Advocacy' started by Sherby, Dec 27, 2010.

  1. Sherby

    Sherby Sherby

    Messages:
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    Likes:
    0
    London UK
    A recent UK Article of Tuesday December 21 2010 (Chronic fatigue syndrome virus doubt)
    by NHS choices has 72,000 thumbs down in its rating.


    More than 72,000 ME/CFS Advocates Give Thumbs Down to UK National Health Service XMRV Information.

    Here's the link, but I'm not sure whether you can add your rating outside of the UK
    but please try.
    You will find the rating star just above the comments section.
    Last count it was over 72.500 and rising

    http://www.nhs.uk/news/2010/12December/Pages/chronic-fatigue-syndrome-xmrv-virus-disputed.aspx

    Im not able to reply to any PR forum as and am going to bed and going to stay there, but i thought this might be interesting.
  2. biophile

    biophile Places I'd rather be.

    Messages:
    1,386
    Likes:
    4,549
    This number may be somewhat unreliable, because a single person can vote multiple times. Unless of course that doesn't stick.
  3. Esther12

    Esther12 Senior Member

    Messages:
    5,254
    Likes:
    5,429
    Also... it was a poor article. You don't need to be a patient advocate to realise that.
  4. alex3619

    alex3619 Senior Member

    Messages:
    7,178
    Likes:
    11,229
    Logan, Queensland, Australia
    Hi I already voted on this, I am one of 6 who gave it two stars only because they didn't quite get everything wrong. I did think long and hard about a one star though. Of more interest, who are the 277 who gave it 5 stars? Are they CBTGET fanboys? 72716 have so far given it one star. I hope they get the message that patients are very unhappy with them. Bye, Alex
  5. Frank

    Frank Senior Member

    Messages:
    848
    Likes:
    7
    Europe
    voted one star*
  6. Merry

    Merry Senior Member

    Messages:
    1,357
    Likes:
    607
    Columbus, Ohio, USA
    Voted. One star. Fun.
  7. Desdinova

    Desdinova Senior Member

    Messages:
    275
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    132
    USA
    Apparently they don’t like my viewpoint seems that my post is being held for moderation.

    The longer you stand in the way of progress and truth the more weight that will build until it inevitably falls upon you. This appears to be more slinging of crap science in an effort to burry real science and truth. The biggest problem with doing that is if you sling enough crap its stench inevitably creates such a stink that it attracts the attention and interest of those you sought to hide things from.

    Maybe they didn't like the phrase "crap science"? So much for open public feedback, wonder how soon it will be until they ban Americans from registering at their site?

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