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700,000 GB Pounds extra given by the (UK) Medical Research Council to the PACE Trial

Discussion in 'General ME/CFS News' started by Dolphin, Mar 16, 2010.

  1. Dolphin

    Dolphin Senior Member

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    (This is just a copy of a Co-Cure post (I corrected a few typos))

    [5,000,000 GB pounds = 7,627,791.38 US dollars = 5,537,638.53 EURO; 4,000,000.00 GB pounds = 4,430,118.61 EURO = 6,102,208.33 US dollars]

    I don't believe it has been widely highlighted that an extra 702,975 was granted by the UK Medical Research Council (MRC) to the PACE Trial in the last two years.


    It is unclear to me what the final cost of the trial is but it seems to be safe to say it is over 4m and may be approaching 5m as there may be extra NHS costs as well.


    Back in 2004, in a piece for the Edinburgh MESH Spring 2004 newsletter, Michael Sharpe (one of the principal investigators) said: "The trial will cost nearly four million pounds."
    There was no knowledge at that time it would need an extension.


    I am appending some information on the cost issue. Don't forget that there are four governmental bodies funding the trial: the Medical Research Council (MRC), the Department of Health (DH), the Department for Work and Pensions (DWP) and the Scottish Chief Scientists' Office (CSO).


    I'm not sure I have ever seen how much the Department of Work and Pensions (DWP) is contributing. It is highly unusual that they are giving money at all.


    The article,:
    "MAGICAL MEDICINE: HOW TO MAKE A DISEASE DISAPPEAR Background to, consideration of, and quotations from the Manuals for the Medical Research Councils PACE Trial of behavioural interventions for Chronic Fatigue Syndrome / Myalgic Encephalomyelitis, together with evidence that such interventions are unlikely to be effective and may even be contra‐indicated"http://meactionuk.org.uk/magical-medicine.htm has plenty of other information on the PACE Trial.


    Tom


    http://meactionuk.org.uk/magical-medicine.htm
    http://www.mrc.ac.uk/ResearchPortfolio/Grant/Record.htm?GrantRef=G0200434&CaseId=1429

    http://www.pacetrial.org/docs/participantsnewsletter3.pdf


    =========
    Costs to the NHS (from early in the 2000s) These were listed in a document posted on the internet called the PACE Trial Identifier
    http://listserv.nodak.edu/cgi-bin/wa.exe?A2=ind0404B&L=CO-CURE&P=R3461&I=-3

    as

     
  2. Kati

    Kati Patient in training

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    It is unbelieveable that the UK government injects this much money into a project that is not going to change anything in people's life- what a waste of money!
     
  3. Dolphin

    Dolphin Senior Member

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    I agree.
    But it would have been sold to them by Peter White and co that people can just exercise themselves better, they just have maladaptive beliefs and/or are unfit.
     
  4. Min

    Min Senior Member

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    This is a scandalous waste of taxpayers money - 'research' into patients with vaguely defined fatigue, studying psychological interventions - done by the very people who developed and financially benefit from those very interventions. The biased result is a foregone conclusion.

    Let's not forget the FINE trial - run by a psychologist specialising in hypochondria, and supposedly 'researching' the severely affected - all of whom can use a computer or the telephone. Yeah right.

    If this money had gone into biomedical research of patients with neurological M.E. there might have been a breakthrough.
     
  5. fingers

    fingers Senior Member

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    When it's all over we can have some war crimes trials. I can't wait.

    Anyone seen a response to Malcolm Hoopers missive yet? Or is that too much to expect?
     
  6. biophile

    biophile Places I'd rather be.

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    Horton of the Lancet is now claiming these were for legal fees etc due to criticism: "And indeed the study costs $4 million pounds to undertake but the allegations and the freedom of information requests and the legal fees that have been wrapped up over the years because of these vexatious claims has added another 750,000 pounds of taxpayers' money to the conduct of this study."

    http://www.abc.net.au/rn/healthreport/stories/2011/3192571.htm#transcript
     
  7. Enid

    Enid Senior Member

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    Bet they are all trying to cover up now. Seems to be much ducking and diving and changing of positions as research findings reveal real ME.
     
  8. Dolphin

    Dolphin Senior Member

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    I think that is most likely other money (or else money from the total pot for the trial). It was announced the extra money was to help recruitment (too tired/busy to look up links). But it was very interesting to hear the figure of 750,000 pounds of legal fees being mentioned. The other possibility I had was that this was actually money NICE spent on the court challenge and that has been mentioned to Richard Horton at some stage as a waste of taxpayers' money that ME patients/activists have caused!? Or perhaps NICE and other stuff!?? It would be interesting to find out more.
     
  9. SilverbladeTE

    SilverbladeTE Senior Member

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    Somewhere near Glasgow, Scotland
    It's like funding "Phrenology", hell once upon a time, classifying people by the bumps on their head WAS "science" according to the same kind of pinheaded, stupid, arrogant SOBs! :p
     
  10. Snow Leopard

    Snow Leopard Senior Member

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    If they wanted to save taxpayers money, they could have just relied on the study by the Belgian government. It is pretty disingenuous to blame those who have legitimate legal complaints and criticisms as 'costing taxpayer money'.
     
  11. Sean

    Sean Senior Member

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    Poor and unreliable results from PACE are going to cost the taxpayer a damn sight more.
     
  12. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    That's outrageous of him to say that! Vexatious claims are frivolous claims considered unethical to litigate. What a jerk!
     
  13. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    are "audio machines" cassette players? i didn't know they even made audiotapes and cassette players anymore. They could have gone to some yard sales and saved thousands of pounds.
     
  14. justinreilly

    justinreilly Stop the IoM & P2P! Adopt CCC!

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    Oh My God, what a Scumbag Piece of Sh!t this Horton is!!!!!!!!!

    I hadn't actually listened to this yet. Unbelievable!!!!! Rot in Hell, with your confrere Dr. Mengele!
     

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