Hi all
I started Fredds protocol at the end of April, but wasn't aware of the folic acid issues so I switched to the non-folic acid varieties of folate & adb12 only 3 weeks ago. I had very few side effects/symptoms while taking folic acid; since switching, the side effects/symptoms have been unpleasant.
I immediately noticed a difference between the Metafolin and Actifolate; I started using the same quantity of Metafolin as Actifolate and it knocked me flat. Metafolin is far more potent for me. Is it a good sign that the Metafolin knocked me flat?
The last 3 weeks have been very rough. I've cut my doses of mb12 and metafolin way back but I'm exhausted all the time. I'm using the Jarrow mb12, Source Naturals adb12 and also using all the co-factors outlined in Fredds revised protocol post including potassium.
So far;
- more headaches and migraines which are unrelieved by even strong NSAIDs.
- very poor energy, needing to rest a lot.
- my skin sometimes feels like its crawling.
- skin; dry and lots of boils/breakouts.
- temperature fluctuations; sometimes I'm frozen solid no matter how many layers I wear; other times I'm too warm
- sweating (unusual for me)
- an odd echoing sensation in my head
The migraines and headaches seem to respond to SAM-e (800mg). Can someone tell me what that means - I'm not sure how to interpret it?
I guess I'm just wondering if I'm on the right track here.
In my years with CFS, I have tried a lot of treatments. Some of them made me feel very ill from day 1, yet I stuck with them because I thought it was just a detox period.
However, they caused lasting damaging effects from which I never recovered so now I'm very wary of treatments which make me feel bad from the outset.
A lot of people seem to report improved energy in the early stages; this has not happened for me - just the opposite in fact. So far its all been unpleasant and exhausting. I'm willing to stick it out if there are going to be benefits, but it'd be nice to know that I wasn't doing myself further harm.
How long can I expect the unpleasantness to last? How long before I should be re-assessing whether I'm doing the right thing?
thanks
I started Fredds protocol at the end of April, but wasn't aware of the folic acid issues so I switched to the non-folic acid varieties of folate & adb12 only 3 weeks ago. I had very few side effects/symptoms while taking folic acid; since switching, the side effects/symptoms have been unpleasant.
I immediately noticed a difference between the Metafolin and Actifolate; I started using the same quantity of Metafolin as Actifolate and it knocked me flat. Metafolin is far more potent for me. Is it a good sign that the Metafolin knocked me flat?
The last 3 weeks have been very rough. I've cut my doses of mb12 and metafolin way back but I'm exhausted all the time. I'm using the Jarrow mb12, Source Naturals adb12 and also using all the co-factors outlined in Fredds revised protocol post including potassium.
So far;
- more headaches and migraines which are unrelieved by even strong NSAIDs.
- very poor energy, needing to rest a lot.
- my skin sometimes feels like its crawling.
- skin; dry and lots of boils/breakouts.
- temperature fluctuations; sometimes I'm frozen solid no matter how many layers I wear; other times I'm too warm
- sweating (unusual for me)
- an odd echoing sensation in my head
The migraines and headaches seem to respond to SAM-e (800mg). Can someone tell me what that means - I'm not sure how to interpret it?
I guess I'm just wondering if I'm on the right track here.
In my years with CFS, I have tried a lot of treatments. Some of them made me feel very ill from day 1, yet I stuck with them because I thought it was just a detox period.
However, they caused lasting damaging effects from which I never recovered so now I'm very wary of treatments which make me feel bad from the outset.
A lot of people seem to report improved energy in the early stages; this has not happened for me - just the opposite in fact. So far its all been unpleasant and exhausting. I'm willing to stick it out if there are going to be benefits, but it'd be nice to know that I wasn't doing myself further harm.
How long can I expect the unpleasantness to last? How long before I should be re-assessing whether I'm doing the right thing?
thanks